Day 3 - Dealing with ME

Day 3 - Dealing with ME. A list of aids, adaptations, medication and treatments.

We are up to day 3 now, and this is probably going to be quite a long post, but I'll try keep it simple. I'm going to list the things that I have/need to help me with my ME symptoms.

Aids:

*Wheelchair

*Electric scooter

*Crutches

*Walking stick

*Perching stool

*Extra handrails on stairs

*Bath-lift

*Bedlift

*Insoles

*Rails outside

*Sofa bed

*Pillows for certain problems (legs, neck..ect)

*Splints for both wrists

*Kinesiology tape

*Occasional heart/blood pressure monitor

Adaptations:

*Downstairs bathroom with toilet and wetroom

Medication:

Without going into detail of exact meds and dosage for some items...

* Antidepressants

*Anti-anxiety medication

*Anti-nausea medication

*Pain medication - gabapentin and tramadol

*Digestive medication - Omeprazole, mebevarine + others for deodenitis 

*Sleep medication - melatonin

*Asthma - steroids and inhalers

*Vasovagal syncope - steriod tablets

*Vitamins & minerals - Vitamin D tablets, Iron, Magnesium spray and salts

*Migraines - migraleve & paracetamol 

*Extra - nose spray to help with breathing issues, throat spray for recurrent infections, heat pad, cool pad, eye masks, ear plugs, remote controlled dark light...

 (Not even a weeks worth of tablets)

Treatment:

There is no cure for ME. I do these treatments to help stabilise my condition and help make small improvements.

*Alternative therepy - Accupuncture and cupping. This is done weekly without fail and I've had it for the past 2/3 years. If I miss one week I become bedbound, so it's been a lifesaver for me, although it hasn't cured the problem

*Physio rehab and occupational therapy treatment

*Pacing

I could show you photos for all of these things, but that would a) take up a lot of room and b) be quite boring as you've seen most of these things before. Instead, I leave you with a slight snapshot into my life. I'm in hospital a lot and try my best not to complain about it. Here are some hospital related photos from a&e and other incidents.

Kate x