tag:blogger.com,1999:blog-79046636816198252652024-02-22T05:38:15.224-08:00Kate StanforthKate, 26, England.
Activist, Model, Dancer, Blogger.kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.comBlogger133125tag:blogger.com,1999:blog-7904663681619825265.post-19636595526108524832023-12-05T05:03:00.000-08:002023-12-05T05:05:51.026-08:005 Christmas Activities In Newcastle Suitable For Neurodivergent People Of All Ages<p>Firstly, I just want to say how excited I am to be back blogging! I'll catch you up on what's been happening soon, but first, here's a post I've been working on with <a href="https://newcastlegateshead.com/" target="_blank">NewcastleGateshead</a>.</p><p><i>This post is sponsored by NewcastleGateshead. As always, all views are my own and I have worked with them to make sure that the content is something which we are both proud of!</i></p><p>The majority of my family are Neurodivergent. I'm pleased to say that I'm finding venues are starting to cater better for Neurodivergent people in general, however, I personally find that this is often aimed at children. So, in this blog it was really important for me to highlight activities suitable for all ages. Please, let me know if you can recommend any more. And, I do apologise if the grammar for Neurodiverse/Neurodivergent isn't quite correct - still trying to get to grips with that one!</p><p><b><u></u></b></p><div class="separator" style="clear: both; text-align: center;"><b><u><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWcK_sU1jwGeJIgaj0qtLETt2Cet1Sv_YIsqETn6rU2OTN49NtV84uwZC-Kl8F33Ca4C_Wjqp_UTPnifmx9i8SXRM3t0S_imHnRJtknZ0vK9JNA0pZNjMFYYDf3xQW-A5gu4XDF37DrY9DsZdzimmnCtERHuVXznzZNq-5VtvEZBGFmE5TOI3AfYPRsmzj/s13774/IMG_0632.HEIC" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="3900" data-original-width="13774" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWcK_sU1jwGeJIgaj0qtLETt2Cet1Sv_YIsqETn6rU2OTN49NtV84uwZC-Kl8F33Ca4C_Wjqp_UTPnifmx9i8SXRM3t0S_imHnRJtknZ0vK9JNA0pZNjMFYYDf3xQW-A5gu4XDF37DrY9DsZdzimmnCtERHuVXznzZNq-5VtvEZBGFmE5TOI3AfYPRsmzj/s16000/IMG_0632.HEIC" /></a></u></b></div><div>Image description: A panorama of a wall at The Baltic showing a range of colourful canvases designed by Neurodivergent artists. These can be audio described when visiting the centre. </div><div><br /></div><u style="font-weight: bold;">'Project Art Works' Residential Exhibition at The Baltic</u><p></p><p><span face=""Caslon Regular", sans-serif" style="background-color: white;">23 September 2023 – 25 February 2024 | 10am-6pm</span></p><p>An exhibition and collaboration to increase the visibility and presence of<br />Neurodivergent artists in contemporary art. With over 50 pieces of mixed media artwork, it's not to be missed!</p><span face="Caslon Regular, sans-serif"><p style="text-align: left;"></p><ul style="text-align: left;"><li><span face="Caslon Regular, sans-serif"><span style="background-color: white;">The Baltic Crew Team are on hand to interpret the artwork to help bring meaning and understanding to the </span></span><span>exhibition</span></li></ul><ul style="text-align: left;"><li><span>The building and facilities are fully accessible. </span></li></ul><ul style="text-align: left;"><li><span>There are free exhibition tours and access guides</span></li></ul><p></p></span><div><span face="Caslon Regular, sans-serif"><span>Whilst you're there, check out the free activities in Baltic's Front Room! </span></span></div><div><span face="Caslon Regular, sans-serif"><span><br /></span></span></div><div><span face="Caslon Regular, sans-serif"><span><a href="https://baltic.art/whats-on/vY-project-art-worksresidential/">https://baltic.art/whats-on/vY-project-art-worksresidential/</a></span><br /></span><div><span face="Caslon Regular, sans-serif"><span><br /></span></span></div></div><div><b><u>Neurodivergent Night at Northern Lights</u></b></div><div><b><u><br /></u></b></div><div><span face=""Caslon Regular", sans-serif" style="background-color: white;">7th December | 4.15pm - 5.15pm</span></div><div><span face=""Caslon Regular", sans-serif" style="background-color: white;"><br /></span></div><div><span face=""Caslon Regular", sans-serif" style="background-color: white;">Enjoy the Northern lights with reduced audience capacity and reduced audio. </span></div><div><ul style="text-align: left;"><li><span face="Caslon Regular, sans-serif"><span style="background-color: white;">You can get a free carer ticket (with evidence)</span></span></li><li><span face="Caslon Regular, sans-serif"><span style="background-color: white;">You can also get a free fast-pass ticket (on a case by case basis)</span></span></li></ul><div><span face="Caslon Regular, sans-serif"><span>I will say, I am disappointed there is only one night, for one hour, to support those with additional needs. I also sigh every time I have to upload countless documents to prove my disability to get the access requirements. But, at least it's something?</span></span></div></div><div><span face="Caslon Regular, sans-serif"><span><br /></span></span></div><div><span face="Caslon Regular, sans-serif"><span>*Please note, that the entrance for Northern Lights is not well signposted, so <b>please check</b> where you are going before you turn up so you aren't wondering around in the cold!*</span></span></div><div><span face="Caslon Regular, sans-serif"><span><br /></span></span></div><div><span face="Caslon Regular, sans-serif"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1aF3v1fE0Dz44LlgV_SAxnfjUOJXNdjF3zCHA3WSOcx11GCO2l74iVguJ_kr4czCuQ70KkmluKgCTqvMB3eB6f6_-OkL_x3yMgCBcBA1EKlApruBtPmcRZ8L3BRBnHjGTKlRbiFncJQCOi-njRC6afg4arG0HFm5UF4XN0cl0996xC0oi1TmGjdotB69X/s2000/northern%20lights.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1414" data-original-width="2000" height="283" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1aF3v1fE0Dz44LlgV_SAxnfjUOJXNdjF3zCHA3WSOcx11GCO2l74iVguJ_kr4czCuQ70KkmluKgCTqvMB3eB6f6_-OkL_x3yMgCBcBA1EKlApruBtPmcRZ8L3BRBnHjGTKlRbiFncJQCOi-njRC6afg4arG0HFm5UF4XN0cl0996xC0oi1TmGjdotB69X/w400-h283/northern%20lights.jpeg" width="400" /></a></div><br />Image description: A map in a bright graphic style of Northern Lights, Newcastle. In a circular, clockwise motion from the entrance the immersive experiences are: End of rainbow, Our North Star, Laser Garden, We Are Stardust, Mashmallow Trees (Accessible Toilets), Dash, Fluff Pods, Christmas Twist, Will-O-The-Wisps, tetra Pack, Luminary Lane, Electric Avenue, Upon A Star, Christmas Market. </span></div><div><span face="Caslon Regular, sans-serif"><span><br /></span></span></div><div><span face="Caslon Regular, sans-serif"><span><a href="https://northernlightsnewcastle.com">https://northernlightsnewcastle.com</a></span></span></div><div><br /></div><div><u style="font-weight: 700;">Christmas Activities At The Common Rooms</u></div><div><u style="font-weight: 700;"><br /></u></div><div>Enjoy STEM activities throughout December in the Common Rooms! Activities include:</div><div><ul style="text-align: left;"><li>Tipsy Lego</li><li>Make Your Own Light Up Christmas Card</li><li>Glass Bottle Painting</li></ul><div>The activities are reasonably priced and such a good find for anyone who loves STEM (Science, Technology, Engineering and Mathematics!) </div></div><div><br /></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicqrWdQqDz4BWxEFTOtvGsVMMtNOAJ7oDejKtocXiM51QCeqT4_Ug46kjyspgGyX5UH_j8UPG830MYftpEnAeCe3xJh1QvR-bVBirkhGwUVSo70tb3agtMwKfYD0R-TLpPdB2xn8cx69BGXUQcP__Q6qGGp__dmeBUn6G5-OXo_LqfB5OHDK6DB2MLxg89/s1884/Screenshot%202023-12-05%20at%2012.57.26.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="938" data-original-width="1884" height="199" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicqrWdQqDz4BWxEFTOtvGsVMMtNOAJ7oDejKtocXiM51QCeqT4_Ug46kjyspgGyX5UH_j8UPG830MYftpEnAeCe3xJh1QvR-bVBirkhGwUVSo70tb3agtMwKfYD0R-TLpPdB2xn8cx69BGXUQcP__Q6qGGp__dmeBUn6G5-OXo_LqfB5OHDK6DB2MLxg89/w400-h199/Screenshot%202023-12-05%20at%2012.57.26.png" width="400" /></a></div><br /><div>Image description: A flyer for an activity, LED Christmas cards, at The Common Room. On the left it has someone decorating a Christmas card with paint and some electricity symbols on it. On the right, text says: LED Christmas Cards. Saturday 9th December 12-2pm. Aimed at 5+. Join us for some festive family crafts. Create your own light-up Christmas card using STEM skills. Celebrate the holiday with a dash of science and a sprinkle of creativity. thecommonroom.org.uk. A 2 min walk from Newcastle central station. </div><div><u style="font-weight: 700;"><br /></u></div><div><a href="https://thecommonroom.org.uk/">https://thecommonroom.org.uk/</a></div><div><br /></div><div><u style="font-weight: 700;">Relaxed Film At Tyneside Cinema</u></div><div><u style="font-weight: 700;"><br /></u></div><div>Tyneside cinema have a number of schemes to make going to the cinema financially feasible. In this blog, I'll be highlighting their relaxed screening.</div><div><ul style="text-align: left;"><li>Relaxed screenings take place every month in the Roxy screen on the 3rd floor</li><li>Tickets are £6, companions go free</li><li>The sound will be played slightly quieter and the lights will be slightly raised</li><li>Guests are free to move around and use breakout spaces</li><li>Guest will receive a social story after booking, including information about the film, the building and how the day will run</li><li>There will be no adverts. The team will introduce themselves before the film starts.</li><li><br />Where possible, the screen will have descriptive subtitles<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9Lggvo6pa5c4AKK2tdqU0NfvJv_xqKULssjy6vqNvx5rhDBc9y2I-cPMl3G5ZPxkew2ewUvjOHmitQgshdLLHGDxhEZvHK-JYpXFzLD-l0s7XY6uVBUX85uaZp8HlqjrRi49oKwVcy7WtNIGEhH8jOGEi4dxNR5NRCzxQetZ64Hs0t75-UgIaEysf5pR9/s4032/IMG_0488.HEIC" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9Lggvo6pa5c4AKK2tdqU0NfvJv_xqKULssjy6vqNvx5rhDBc9y2I-cPMl3G5ZPxkew2ewUvjOHmitQgshdLLHGDxhEZvHK-JYpXFzLD-l0s7XY6uVBUX85uaZp8HlqjrRi49oKwVcy7WtNIGEhH8jOGEi4dxNR5NRCzxQetZ64Hs0t75-UgIaEysf5pR9/w300-h400/IMG_0488.HEIC" width="300" /></a></div></li></ul></div><div>Image description: An alleyway with fairy lights running above. The outside of Tyneside cinema with an old fashioned 'Cinema' sign. The entrance is accessible with automatic glass doors. </div><div><br /></div><div><a href="https://tynesidecinema.co.uk/access-cinema/relaxed-screenings/">https://tynesidecinema.co.uk/access-cinema/relaxed-screenings/</a></div><div><br /></div><div><u style="font-weight: 700;"><div><u style="font-weight: 700;"><br /></u></div>Eldon Square Soft Play / Bowling / Shopping</u></div><div><u style="font-weight: 700;"><br /></u></div><div>At Christmas, this can be a bit hit and miss, especially for someone who struggles with sensory overload.</div><ul><li>Quiet hours 10-11am Tuesday + 9-10am Sunday</li><li>Sensory Bags available (Includes fidget toys, ear defenders, timers, glasses...) for £20 deposit</li></ul><div>At a £20 deposit, I can see why I was told no-one has used the sensory bags. Having a young family member with Autism/ADHD, I'd be worried he'd either loose, break or get upset parting with the contents at the end. It's a good idea, don't get me wrong, I just can see there are still barriers in place.</div><div><br /></div><div>That aside, Eldon Square is really a hub of Newcastle and a great place to visit - you just might need to find some quiet corners!<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEguveVg822MujTKH0VV6aiWDtbs7N6CKyfTPrMS3u5GrISaz_rg7TzNUXPRFbH-tX7Co26g0bVe2LNSPPm5idG8W26JZqyN7zqzCkd7AoWpieMIwfw-9DfaMOtIeupSRuPhHrpxz0wnwKiYtQ49GLk8SzfTMx8Q7kasrOx3SFHyos83Y5j-kqFjuY50p9dQ/s4032/IMG_0461.heic" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEguveVg822MujTKH0VV6aiWDtbs7N6CKyfTPrMS3u5GrISaz_rg7TzNUXPRFbH-tX7Co26g0bVe2LNSPPm5idG8W26JZqyN7zqzCkd7AoWpieMIwfw-9DfaMOtIeupSRuPhHrpxz0wnwKiYtQ49GLk8SzfTMx8Q7kasrOx3SFHyos83Y5j-kqFjuY50p9dQ/w300-h400/IMG_0461.heic" width="300" /></a></div></div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;">Image description: A blue sensory bag with a green lanyard with yellow sunflowers, sunglasses, ear defenders, 3 sand timers in different colours, a tangle fidget, a spinning fidget, a popping fidget in the shape of an ice lollipop and 3 snake fidgets. </div><div><br /></div><div><a href="https://eldonsquare.co.uk/">https://eldonsquare.co.uk/</a></div><div><br /></div><div><p class="p1" style="background-color: white; font-feature-settings: normal; font-kerning: auto; font-optical-sizing: auto; font-stretch: normal; font-variant-alternates: normal; font-variant-east-asian: normal; font-variant-numeric: normal; font-variant-position: normal; font-variation-settings: normal; line-height: normal; margin: 0px;">There we go! Do you have any more recommendations? I'd love to hear them!</p><p class="p1" style="background-color: white; font-feature-settings: normal; font-kerning: auto; font-optical-sizing: auto; font-stretch: normal; font-variant-alternates: normal; font-variant-east-asian: normal; font-variant-numeric: normal; font-variant-position: normal; font-variation-settings: normal; line-height: normal; margin: 0px;">Kate x</p></div><div><br /></div><div><br /></div><div><br /></div>kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-48693112580621446992021-01-14T11:35:00.002-08:002021-01-14T11:38:04.650-08:005 Apps That Helped Me Through Lockdown<p style="text-align: center;">Here we are... again. When I started writing in March 2020 about shielding, I didn't think that 10 months later we would still be in this situation. In fact, I don't think anyone did! But, I had an interview today and one of the questions was about what I've learned during the lockdown. What I've learned the most, and what I'm still learning, are coping strategies. Strategies to get me through each day, hour, or minute. And that's something I'm really proud of.</p><p style="text-align: center;">I have never been the most tech-savvy person, but I do know how to use technology <i>fairly</i> well. Anything which helps make my life easier is something I'm interested in and I've certainly noticed over the past few years apps really stepping up their game. I have all sorts of apps on my phone, from organisation tools to social media, but there are some which have really stood out as helping me through the lockdown period which may be useful, in particular, to people with chronic illnesses.</p><div class="separator" style="clear: both; text-align: center;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9woQ_21lq35_NXuD0Y1BqwGOkd6eQ18q_1v16JIDncppFguRXPZk7yiXeaoIGEMLtcMqcOFJJJjLnSv0BIE7vIiFOR6vEB_UHEWJSYlpEJ5OXnsQ_NBI9ViD-B_Uz0YoHegqCZhiQ0vPn/s6000/IMG_0040.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4000" data-original-width="6000" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9woQ_21lq35_NXuD0Y1BqwGOkd6eQ18q_1v16JIDncppFguRXPZk7yiXeaoIGEMLtcMqcOFJJJjLnSv0BIE7vIiFOR6vEB_UHEWJSYlpEJ5OXnsQ_NBI9ViD-B_Uz0YoHegqCZhiQ0vPn/s320/IMG_0040.JPG" width="320" /></a></div><br />My 5 recommended apps:</div><p style="text-align: center;"><b><a href="https://1se.co/">1 Second A Day</a> - </b>You often forget the little things you achieve, especially when you're like me and have memory problems! With this app, you upload a picture, or 1-second video, every day and it mashes it up over time. I have a video of shielding, a video of 2020, and a video of when I got my assistance dog. They become really precious memories and something you want to look back on. </p><p style="text-align: center;"><b><a href="https://www.spotify.com/us/">Spotify</a> - </b>Music is something that really helps me. I can tune out, relax, and meditate. Or, I can choreography and dance. I listen to music every day and it's a real escape for me, so this app is a must!</p><p style="text-align: center;"><b><a href="https://apps.apple.com/us/app/clipomatic-text-on-videos/id1263032315">Clipomatic</a> - </b>Something which you probably didn't expect on this list. But this app translates your voice into written text on the screen. As someone who works in the 'influencer' world, it's really useful for creating accessible content on my platforms and I've used it a lot recently. </p><p style="text-align: center;"><b><a href="https://fuelservice.org/en/aboutus.html">fuelService</a> - </b>Even though I've been shielding, I've still had to go out. I have an assistant dog to walk (which I have to travel to an accessible location), I have had various hospital trips, work commitments, and medical appointments. My car still needs fuelling and this was something I was extra scared of doing because of how many people touch the fuel pumps and pay kiosks. I'd used an app, fuelService, before which requests assistance for disabled drivers and it's even more useful to use during the pandemic.<br /></p><p style="text-align: center;"><b><a href="https://www.apple.com/uk/icloud/find-my/">Findmy</a> - </b>As a 26 year old, many people couldn't think of anything worse than to have a tracker on their phone which their loved ones can view. But when I called my parents a few weeks ago after I was on the floor whilst on a dog walk, I knew that my dad could switch his phone on and find my location. For me, it's peace of mind knowing that if I want to go somewhere, I'm easy to find if something does go wrong (which unfortunately with my health it does!) and my loved ones also don't worry as much. <br /></p><p style="text-align: center;">What apps would you recommend?</p><p style="text-align: center;">Hope you are staying safe,</p><p style="text-align: center;">Kate xx</p>kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-83670607343594307842020-12-27T13:25:00.007-08:002020-12-27T13:25:50.387-08:00Accessible Housing - Petition! <p><span style="color: #0e101a; font-family: arial;">It's 10am and the door rings. I cannot get down the stairs to answer the door. I'm sore from a fall the day before and today, the steps in my house are a mountain I cannot climb. I've been unwell and my friend offers to pop over (pre-covid) to visit. I have to turn down the invitation because she's a wheelchair user. I have steps up to my house, my door isn't wide enough and I'm stuck upstairs. I'm defeated.</span></p><p><br /><span style="color: #0e101a; font-family: arial;"><br /></span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;"><span style="font-family: arial;">I have lived with my disability for 12 years now and I can't remember a day when I haven't had to fight for something related to my condition. If I didn't have a disability, I would walk and not have to raise thousands of pounds for a wheelchair. If I didn't have a disability, I would be able to care for myself, and not have to fight to get a PA so I can live my life. And, if I didn't have a disability, I don't think I would be fighting so hard to get a house that was safe for myself, my carers, and my friends. </span></span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span style="font-family: arial;"><br /></span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span style="font-family: arial;"><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;">Statistics published in July from the </span><a class="editor-rtfLink" href="https://www.gov.uk/government/collections/english-housing-survey#2018-to-2019" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #4a6ee0; margin-bottom: 0pt; margin-top: 0pt;" target="_blank"><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;">English Housing Survey 2018/19 </span></a><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;">revealed that just 9% of homes in England have key features, such as a toilet at entrance level and sufficiently wide doorways, to deem them accessible. As a wheelchair user myself, these basic features don't make a property fully accessible, so I can imagine the number of 'truly accessible' properties is even lower.</span></span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span style="font-family: arial;"><br /></span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;"><span style="font-family: arial;">I live in Northumberland, and campaigning for accessible housing has been frustrating. It's a big region, with several large new-build developments appearing, but frustratingly very few accessible houses being built. In 2017, The council reported that 800 wheelchair users were thought to be living in accommodation that was unsuitable to their needs. Furthermore, around 34,000 households in Northumberland had at least one family member with a physical disability; half of whom are over 65 years of age. I can only imagine that number has grown.</span></span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span style="font-family: arial;"><br /></span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;"><span style="font-family: arial;">One of the main problems is, in all the housing reports I have read, there isn't a section for people with 'long term chronic illnesses' who will need accessible housing (with carer/partner/etc). There's a box for life-limiting. There's a box for learning difficulties. There's a box for over 65's (who get priority over us youngsters and many properties are ringfenced). There are over 15 million people with chronic health conditions. It's time to take us into account and start making plans for our welfare.</span></span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span style="font-family: arial;"><br /></span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span style="font-family: arial;"><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;">So, what can I do to help? I've bitten the bullet and set up a petition. Chronic illness </span><em style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;">still</em><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;"> isn't being talked about enough and we need it to be. We need to be 'that tick box' so we can get the basic things we are fully entitled to, so here we go. I'd appreciate any signatures!</span></span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span style="font-family: arial;"><br /></span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;"><span style="font-family: arial;"><a href="http://chng.it/kjyS2Q6bZh">http://chng.it/kjyS2Q6bZh</a></span></span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span style="font-family: arial;"><br /></span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span style="font-family: arial;">Kate x</span></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjTOH0zmyMaI-lbgdR0CvD4Y49ljcLWdoTQr2MYNX7BT3g-t6_SaWx-UdT8qDTyJnq-9u-HFlQJB8YHPeDV1-680b3k_21iUCwl3VFgGu_-QAL-eFSjZG7uiFIDt8OWA0UGuBiFv8nTRs6h/s1080/Allied+2+%25281%2529.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1080" data-original-width="1080" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjTOH0zmyMaI-lbgdR0CvD4Y49ljcLWdoTQr2MYNX7BT3g-t6_SaWx-UdT8qDTyJnq-9u-HFlQJB8YHPeDV1-680b3k_21iUCwl3VFgGu_-QAL-eFSjZG7uiFIDt8OWA0UGuBiFv8nTRs6h/s320/Allied+2+%25281%2529.png" /></a></div><p></p>kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-68923574804834255482020-12-15T10:05:00.002-08:002020-12-15T10:31:08.102-08:00Winter Warmers <div style="text-align: center;"><span style="font-size: medium;">Winter is always a time of year where my symptoms flare and I think a lot of it is due to the cold weather. Winter, for me, is a happy time of year usually spent with my family but it is often overshadowed by the extra pain, exhaustion, and low mood. However, I've learned in my many years of chronic illness how to manage my symptoms a lot better now and I wanted to share with you how I (try at least!) to keep my body happy over Christmas.</span></div><div style="text-align: center;"><span style="font-size: large;"><br /></span></div><div style="text-align: center;"><span style="font-size: large;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjf4a4-7Ht7LVYGSJO9PEvYPTGKnq1o2l_ZmT1gBGICi7csR4-R0XBGhrgD3AdBjjv2QJGGc_lNZAy7NeWnJ13_2yUbHziYZUtUW4eSKbyi1clIb5lL1b4aERkmQ93rZDg9J4qMT9YIlwfX//" style="margin-left: 1em; margin-right: 1em;"><img alt="" data-original-height="2048" data-original-width="2048" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjf4a4-7Ht7LVYGSJO9PEvYPTGKnq1o2l_ZmT1gBGICi7csR4-R0XBGhrgD3AdBjjv2QJGGc_lNZAy7NeWnJ13_2yUbHziYZUtUW4eSKbyi1clIb5lL1b4aERkmQ93rZDg9J4qMT9YIlwfX//" width="240" /></a></div><br /></span></div><div style="text-align: center;"><span style="font-size: medium;">Keeping your body happy, Kate? Is that actually a thing? Yes, it is. When you have a chronic illness, you know that no matter what you do, you aren't going to feel or make yourself 'better'. However, you can give your body the best conditions to feel as good as you can. It's worth noting, 'as good as you can' might still be bedbound, or having 50+ dislocations a day. It's self-care, but with a medical mindset of how to keep symptoms as manageable as possible for that day. </span></div><div style="text-align: center;"><span style="font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-size: medium;">One of the ways I keep myself 'as well as possible' is keeping warm. Sounds simple? Wrong. If I get tired, and this could be tired from simply talking for 5 minutes too long, my body goes into a complete shut-down and I lose the ability to regulate my temperature. I go stone cold, with very little ability to warm up and it'll usually take a day for my temperature to reset with heated blankets, baths, etc. The exact same thing happens when I get cold, my body also starts shutting down and I get fatigued extremely quickly. Cold to 'well' people might be when it's cold outside on a winter's day, but cold to me is when my house isn't at 20 degrees as I'm so sensitive to temperature.</span></div><div style="text-align: center;"><span style="font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-size: medium;">The cold affects many people with chronic illnesses, which leads me on to today's blog post where I wanted to share 5 of my tips to stay warm this winter. It's been a difficult 2020, but I certainly want my followers who read my blogs to stay as safe and as well as they possibly can! </span></div><div><span style="font-size: medium;"><br /></span></div><div><b><span style="font-size: medium;">Register for Warm Home Discount</span></b></div><div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7mZJNCLA5-eniJpDPu2eUsfIun6B0HmgtwboEbbN4Mxt9E9fDEcJl3chh9DRnoxpwfOtfkQYm6Ia5xOUs4fyhcaJvxfpRHwOQuhblhK-Ce4zZuP-wbPTeZV4oh0b5MEtl1Yxnb-8TiqdH//" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img alt="" data-original-height="1472" data-original-width="828" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7mZJNCLA5-eniJpDPu2eUsfIun6B0HmgtwboEbbN4Mxt9E9fDEcJl3chh9DRnoxpwfOtfkQYm6Ia5xOUs4fyhcaJvxfpRHwOQuhblhK-Ce4zZuP-wbPTeZV4oh0b5MEtl1Yxnb-8TiqdH//" width="135" /></a></div><span style="font-size: medium;">If you're on a low income, you could get £140 off your electricity bill for winter 2020-2021 under the Warm Home Discount Scheme. It's something which I personally never applied for until this year, but I know will make a huge difference! Register <a href="https://www.gov.uk/the-warm-home-discount-scheme">here</a></span></div><div><br /><br /></div><div><b><span style="font-size: medium;">Invest In Good, Cozy Bedding</span></b></div><div><span style="font-size: medium;">If you're like me and spend 95% of your time in bed, you want something which feels <i>and</i> looks nice. I've made mistakes in the past buying cheaper bedding and it didn't suit me because it irritated my skin or I simply loved another set more. All I have on my bed now are 'teddy bear' feel fabrics. That isn't great for people who overheat, but for me, I use it with a cooling sheet on the bottom (provided by my OT) and it really gives me that 'homely' feeling. </span></div><div><span style="font-size: medium;"><br /></span></div><div><span style="font-size: medium;"><b> All The Heated Products</b></span></div><div><div class="separator" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsggfi__9S2Y1Bf4Yck8FgWAxVfzzKNdEnaAkQg36MOvmooOBqpL2PZc4CceigBgRYKGuWyEaxiw2KtKc4O3duqqtAyvYTTGRAvfQaTKIi17KoHLRt5oTqxkYriBP0JZ23y7OBHlIx7ZhG//" style="margin-left: 1em; margin-right: 1em;"><img alt="" data-original-height="1536" data-original-width="2048" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsggfi__9S2Y1Bf4Yck8FgWAxVfzzKNdEnaAkQg36MOvmooOBqpL2PZc4CceigBgRYKGuWyEaxiw2KtKc4O3duqqtAyvYTTGRAvfQaTKIi17KoHLRt5oTqxkYriBP0JZ23y7OBHlIx7ZhG//" width="320" /></a></div><span style="font-size: medium;">I think I've invested in nearly every heated product I know of. From heated blankets to electric hand warmers, I have so many different devices depending on where I'm going and the type of pain. My best one is my electric hot water bottle which is really amazing at getting targeted pain areas and putting on my lap for those cold dog walks. You can get them from Amazon <a href="https://www.amazon.co.uk/Vivo-Rechargeable-Electric-Bottle-Massaging/dp/B079YCMCWQ/ref=pd_lpo_201_t_0/262-2269196-6664814?_encoding=UTF8&pd_rd_i=B079YCMCWQ&pd_rd_r=d8e8310b-3a32-4c2f-a235-1e11790592f1&pd_rd_w=b8c9t&pd_rd_wg=2R6QZ&pf_rd_p=7b8e3b03-1439-4489-abd4-4a138cf4eca6&pf_rd_r=XJ6FA517X24HPV7KA8EK&psc=1&refRID=XJ6FA517X24HPV7KA8EK">here</a> alongside lots of other rechargeable goodies!<br /></span></div><div><span style="font-size: medium;"><br /></span></div><div><span style="font-size: medium;"><b>Baby, It's Cold Outside</b></span></div><div><span style="font-size: medium;">Obviously, it's going to be colder outside, so really consider what you are wearing. I wear Heatgen thermals everywhere (even in the summer!) and they have been a lifesaver, especially when I turned up to a photo shoot this year and there was no heating! I also wear a Ski jacket and Ski gloves to keep me nice and toasty. I'm going to invest in a Snowsuit after Christmas to walk my dog in (I know it sounds extreme, but it keeps me warm!). For wheelchair users, I recommend having a good blanket to shield off wind/rain/etc like <a href="https://www.bundlebean.com/">Bundlebean</a>.</span></div><div><span style="font-size: medium;"><br /></span></div><div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiMxdTfjXS8JEl-W2BomGv7ka22v1dWAeSSbDOk0DD46iuxRup2mQWIMSUkHNsAetLgiWXBpgqRytVVOnMnGURvq1-WumwMbo7muz1nnP0mN6aVU_8XPbUXzXqwc3ozntXp5sE_V8jWhDBx//" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img alt="" data-original-height="2048" data-original-width="1536" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiMxdTfjXS8JEl-W2BomGv7ka22v1dWAeSSbDOk0DD46iuxRup2mQWIMSUkHNsAetLgiWXBpgqRytVVOnMnGURvq1-WumwMbo7muz1nnP0mN6aVU_8XPbUXzXqwc3ozntXp5sE_V8jWhDBx//" width="180" /></a></div><span style="font-size: medium;"><b>Warm Drinks</b></span></div><div><span style="font-size: medium;">At home, I have a <a href="https://www.amazon.co.uk/Breville-HotCup-Water-Dispenser-Litre/dp/B001L5SSGQ/ref=sr_1_6?dchild=1&keywords=hot+cup&qid=1608053289&sr=8-6">hot cup dispenser</a> which is the best purchase of the year. Because I can't lift a kettle, it means I can still have a cup of tea to warm me up and I can also do it independently! Next, get a good thermal mug (and don't drive off with it on the top of your car like my mum did...). For wheelchair users, I definitely recommend <a href="https://liveffora.com/collections/all">Ffora</a> as you can attach yours to your wheelchair which is incredibly useful. After spilling hot water over myself trying to carry drinks, it's definitely worth the investment.</span></div><div><span style="font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-size: medium;">And that's it! Is there anything else you would add to the list? I hope you have a safe, comfortable, and happy Christmas.</span></div><div style="text-align: center;"><span style="font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-size: medium;">Love Kate x</span></div><div><span style="font-size: medium;"><br /></span></div><div><span style="font-size: medium;"><br /></span></div><div><br /></div>kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-50881915638500935702020-10-28T10:23:00.007-07:002020-10-28T10:48:57.292-07:00Invest In Us: ME and Long-Covid<p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;">(Just a note before we start, that this blog is my own, personal opinion and that these thoughts are my own. I am also not a medical professional)</span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;"><br /></span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh3CWqoomnaTUtyzar8bo03LHVKqP6t3szq_BhcODlBLoTrFO6huyN55FyYmbUE36R1lFGTdhpG6XFQa1LRc1C_93J2RN4H-fB2_m28f7Q5-R2zm819lOEqRlqC4aytzbPvW6fpt2nx_0kV/s2048/IMG_1474.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1365" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh3CWqoomnaTUtyzar8bo03LHVKqP6t3szq_BhcODlBLoTrFO6huyN55FyYmbUE36R1lFGTdhpG6XFQa1LRc1C_93J2RN4H-fB2_m28f7Q5-R2zm819lOEqRlqC4aytzbPvW6fpt2nx_0kV/s320/IMG_1474.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;">Picture: Hannah Todd Photography</div><p></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><br /></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;">The Coronavirus pandemic is something which has taken over 2020. Conspiracy theories were circulated about how the virus started, people still don't believe the statistics are real, and it's fair to say the handling of the whole situation has been completely disastrous. </span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><br /></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;">As someone in the 'clinically extremely vulnerable' group, I have spoken throughout the pandemic about the lack of support for 'shielders' and how it has cost countless lives. 2 in 3 victims who died of Coronavirus in the first wave were disabled, and it wasn't a surprising statistic. I published my own timeline of 'support' throughout the pandemic which showed my first phone call from the shielding service, to check I had food and medication, was received over 2 months after I started shielding. On top of that, I had my care services cut, very little updates as to how to protect myself and my family, and, unachievable guidelines (like moving the disabled person out if someone gets COVID, loved that one!).</span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><br /></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;">As an activist, I work closely with the disabled community and there is something which is continuously popping up. </span><strong style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;">Why are people with Long-Covid getting support and I am not? </strong><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;">And, I have a theory. (A theory, I must stress, not the answer).</span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><br /></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;">If you didn't know, I have ME (alongside several other complex health conditions). When Covid first materialised, and people realised that it was having lasting health effects, everyone thought it would be grouped into Post-Viral Fatigue, or, ME. But, they've created a new syndrome called Long-Covid. </span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><br /></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;">Long-Covid has slightly different symptoms to ME, like breathlessness, palpitations, fevers, loss of smell or taste. But, after 3 months, the diagnosis could change to a Long-Covid ME/CFS diagnoses. This is because, to get diagnosed with ME you have to have the symptoms for a minimum of 3 months, whereas for Long-Covid, you need to have symptoms for more than 3 weeks. </span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><br /></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;">Treatment for ME and Long-Covid are very similar, they advise pacing, good sleep and good nutrition. However, it's understandable that the ME community are angry as the harmful GET (Graded Exercise Therapy) isn't advised for people with Long-Covid, yet, still appears on the NICE Guidelines after years of fighting to get it removed. My thoughts on that are it's much easier for them to start fresh and get it right first time with a new condition, than for NICE to own up and accept they have damaged thousands of people's health in the UK; me being one of those.</span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><br /></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;">Anyways, back to the main point of the blog, why Long-Covid gets the funding. This, again, I must stress is a theory. Long-Covid has a proven cause for the condition and I think that's why it's investable. People know of the virus that's caused it, some have had it and you can easily see the research. ME, a condition which affects over 250,000 in the UK, still has no official cause. And for that reason, people </span><em style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;">still</em><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;"> don't believe in it. I thoroughly believe that because Long-Covid is 'new' and has an official cause, the research will be ploughed into that. But, because ME has been around so long and we have yet to have a proper breakthrough, there isn't the interest. I worry that after 3 months, when this Long-Covid turns into Long Covid ME/CFS, they will receive the same treatment as we do and be brushed to one side. That's my main concern. </span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><br /></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;">The good news is, the links between Long-Covid and ME mean that any research may give more of an insight into ME, and, it is getting ME in the news a bit more. But, we deserve more. There are 60,000 people in the UK now with Long-Covid. But there are more than 4 times that amount with ME, waiting for a cure. Invest in them. Invest in us. </span></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><br /></p><p style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; color: #0e101a; margin-bottom: 0pt; margin-top: 0pt;"><span data-preserver-spaces="true" style="background-attachment: initial; background-clip: initial; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial; margin-bottom: 0pt; margin-top: 0pt;">Kate x</span></p>kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-51017793174492346182020-08-10T16:28:00.002-07:002021-02-12T13:18:51.749-08:00Keeping Cool<p style="text-align: center;">It's summer and many people are celebrating the fact that we are experiencing an unusually warm period of weather. The heatwave might be good news for some, but for those with chronic illnesses, it can play absolute havoc to their conditions. My body struggles in the heat, which can exacerbate faint episodes, fatigue, and pain. So, I thought I would share some of my personal tips on staying cool in the summer heat.</p><blockquote><p style="text-align: center;"><span style="font-size: x-large;">"My body struggles in the heat, which can exacerbate faint episodes, fatigue, and pain"</span></p></blockquote><p style="text-align: center;">In this blog post, I'm going to focus on 5 easy-reach items I would particularly recommend. I have an emergency medication box in my room with items that are easy to grab for if I'm starting to feel unwell. These items are transportable, easy to use and I can manage most of these myself if I'm having a flare. </p><p style="text-align: center;"><i>*Some of these items are affiliate links, which I have marked with AF. This means that if you purchase the item through my link, a small percentage gets given to me at no cost to you. No pressure to do so!*</i></p><p style="text-align: center;"><span style="text-align: left;"><span style="font-size: x-large;"><u>5 Easy Reach Items To Keep You Cool</u></span></span></p><p style="text-align: center;"><br /></p><h3>1) Water</h3><div><img border="0" data-original-height="221" data-original-width="228" height="143" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhj4MKDtSSUbt1BiG-B0YLGn10HxGQxFwyM9maOOv6adde17IjhgsqZS7R8-0Lm5_-Q4MgQgmyVw9eQJs0jGoLc2tLCU3Czd7OydToAlTY0DnvfjWSsUpF_NQ2NnAyVmtgYRfhmjXHBXAze/w148-h143/wb.jpeg" width="148" /></div><div>An easy one is to make sure you are hydrated. I have to drink at least 2 liters of water a day to keep my blood pressure stable, so we have water bottles all over the place. Of course, I have a spare one filled with water in my cupboard. Whilst it might not be fresh, it will get me through the night until I can ask for some help in the morning so my parents can get some sleep - so little things like that matter! I've linked the water bottles I use as they are leakproof and clip onto bags. They are expensive though so there's much cheaper options in shops!</div><div><br /></div><div><a href="https://amzn.to/31Hl7x1" target="_blank">Purchase here (AF link)</a></div><h3 style="text-align: left;">2) Migraine Cap</h3><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGcQkQXFMSdtQUCaJlpZQbwb-8w2JLS_JNVuDyh4pQB5jkXcRfqgbUaOhiV9cEM7IfI8C1SxAK_CxVcS0l_m7DgvfAAmc_dpCDWRLmj7vTnDSa6B_SC1SGZaZ_A_2kqspMzxKVuwN2MUVi/s225/mc.jpeg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" data-original-height="225" data-original-width="224" height="180" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGcQkQXFMSdtQUCaJlpZQbwb-8w2JLS_JNVuDyh4pQB5jkXcRfqgbUaOhiV9cEM7IfI8C1SxAK_CxVcS0l_m7DgvfAAmc_dpCDWRLmj7vTnDSa6B_SC1SGZaZ_A_2kqspMzxKVuwN2MUVi/w179-h180/mc.jpeg" width="179" /></a></div><div>As a chronic migraine sufferer, I live in my migraine cap. I own this migraine cap with magic gel which I absolutely love, but there is a whole range on the market. The main thing about this though is that it has a cooling effect and could be used even if you don't have a migraine. I find it really settling because of the pressure too!</div><div><br /></div><div>Note: The one I purchased isn't currently in stock but is called Magic Gel Migraine Cap from Amazon</div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><h3 style="text-align: left;">3) Cool Pad</h3><p style="text-align: left;"></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZZLroqO_UYio-XSkjdQtpSqXBtVmBrZKEK4ScmbJGMojn2VjN8TRLlWvkUG9ExQMGLQ92AH7IHVD6g7pHsgVJ6Qqwz3XzUgsATST2aCw7noxy3jlwokcls4x-J2EYi8XEiH_l2WpXG3-n/s336/cp.jpeg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" data-original-height="336" data-original-width="336" height="215" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZZLroqO_UYio-XSkjdQtpSqXBtVmBrZKEK4ScmbJGMojn2VjN8TRLlWvkUG9ExQMGLQ92AH7IHVD6g7pHsgVJ6Qqwz3XzUgsATST2aCw7noxy3jlwokcls4x-J2EYi8XEiH_l2WpXG3-n/w215-h215/cp.jpeg" width="215" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZZLroqO_UYio-XSkjdQtpSqXBtVmBrZKEK4ScmbJGMojn2VjN8TRLlWvkUG9ExQMGLQ92AH7IHVD6g7pHsgVJ6Qqwz3XzUgsATST2aCw7noxy3jlwokcls4x-J2EYi8XEiH_l2WpXG3-n/s336/cp.jpeg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><br /></a></div><p style="text-align: left;"><br /></p>My assistance dog, Spencer, has a cooling mat, and one day I lay with him on the floor I was so warm. It was only when I was at work did I see on the forums that people were using dog cooling mats to manage their temperature regulation! You can get cooling mats for 'humans', but they are basically the same. Have a look in cheap shops when the weather is warm as there are usually good deals on for dog mats! <p></p><div><a href="https://amzn.to/3itzbRm" target="_blank">Purchase here (AF Link)</a><br /></div><div><br /></div><div><br /></div><div><br /></div><h3 style="text-align: left;">4) Kool Pak Instant Ice Packs</h3><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhVu7nsZkqtXsv_pt5EXMAh2i-MUrlUxUMgj2dPY7vVBXK5mfoXnWrEVrfqjEy0yfvsADNAQQseqcltBVvdOZkBZFWvFlLC-qmiE6W0a0ErzwwN7vWhfBWw2HZF8hXkKM8FtZ5O1oJhIRpd/s369/kp.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" data-original-height="369" data-original-width="188" height="189" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhVu7nsZkqtXsv_pt5EXMAh2i-MUrlUxUMgj2dPY7vVBXK5mfoXnWrEVrfqjEy0yfvsADNAQQseqcltBVvdOZkBZFWvFlLC-qmiE6W0a0ErzwwN7vWhfBWw2HZF8hXkKM8FtZ5O1oJhIRpd/w96-h189/kp.jpg" width="96" /></a></div><div><br /></div><p>Kool paks are something that I rely on so much. Yes, I am aware it would be better to use ice from the freezer but when I am stuck in bed, it's late at night, or I'm out, then these are key. They come as a small plastic pack that you pop and shake to create the ice. They are fabulous for keeping cool, relocating joints, and quick relief after faints!</p><p><a href="https://amzn.to/2XQMyn0" target="_blank">Purchase here (AF LINK)</a><br /></p><p><br /></p><p><br /></p><h3 style="text-align: left;">5) Smart Technology</h3><div class="separator" style="clear: both; text-align: left;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjm9hgCM4On7SZkvbKN03F2wUqHmJzVouvWSUnYReoCmykggYlf4dK603BI0sSLnlrBaxqmU3KrIQ81I1lmT-FkmaPcOMquIDp8pAY0VCdhgQ4PiDzyoJHdkoDmrAMHsq9UBskg5TSh45vF/s336/tapo.jpeg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="336" data-original-width="336" height="215" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjm9hgCM4On7SZkvbKN03F2wUqHmJzVouvWSUnYReoCmykggYlf4dK603BI0sSLnlrBaxqmU3KrIQ81I1lmT-FkmaPcOMquIDp8pAY0VCdhgQ4PiDzyoJHdkoDmrAMHsq9UBskg5TSh45vF/w215-h215/tapo.jpeg" width="215" /></a></div><div class="separator" style="clear: both; text-align: left;">My first 'smart' investment to help with my chronic illness was my remote controlled light bulb which means I can now have a sidelight on without getting out of bed when I'm not well (and change the colours!). Now, I also have a smart plug that I can add to my devices, such as my fan, and turn it off with my voice. This plug that I've linked is only £10 and can be used with many voice-controlled devices, but I personally still prefer the ability to turn things off with a button when I'm able to. </div><div><br /></div><div><br /></div><div><a href="https://amzn.to/3afiKFx">Purchase here (AF Link)</a><br /></div><div><br /></div><div style="text-align: center;">I hope this list helps you and that you are all managing to cope through the heatwave!</div><div style="text-align: center;">Love as always, Kate x</div>
kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-38133251928470173452020-06-27T16:01:00.001-07:002020-06-27T16:01:30.710-07:00I've Let You Down<div class="p1" style="-webkit-text-stroke-color: rgb(0, 0, 0); font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal; text-align: center;">
<i><span style="font-family: inherit;">A blog I would not usually write, but one that I urge you to read.</span></i></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnX9JycaZ20iJ0dIcPTxI96B-Um4_SMFK9iCNslvoxq4Sgkvrn9jLVM_WqIjiSDzPfEX82uqqPId1Fb3q2CIT9tRJ91A6RcFpLIP-9NlHRX8URUg3wuX0QcawM_YuwJbfNRdRjwiWlUlHF/s1600/IMG_5863.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="809" data-original-width="1079" height="239" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnX9JycaZ20iJ0dIcPTxI96B-Um4_SMFK9iCNslvoxq4Sgkvrn9jLVM_WqIjiSDzPfEX82uqqPId1Fb3q2CIT9tRJ91A6RcFpLIP-9NlHRX8URUg3wuX0QcawM_YuwJbfNRdRjwiWlUlHF/s320/IMG_5863.JPG" width="320" /></a></div>
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<span class="s1" style="font-kerning: none;"><span style="font-family: inherit;">For those that don't know me, I have worked hard in the local community for many years, especially in the disability sector. Throughout the years I have helped people in Northumberland access appropriate care, wheelchairs, funded 16 people on respite for a week, petitioned for accessible housing, accessible shops, and much more. </span></span></div>
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<span class="s1" style="font-kerning: none;"><span style="font-family: inherit;">Being disabled is a constant battle for your rights, and whilst I give up my time to fight for people, I simply cannot make the ‘bigger’ changes. I rely on my council and MP to listen and help make these changes, and honestly, I feel incredibly let down. Deemed as one of the regions 'poster girls' who happily will come speak (for free) about disability at events, attend professional meetings and advocate for the region in my own time, it's a shame it hasn't always been a two-way conversation. </span></span></div>
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<span class="s1" style="font-kerning: none;"><span style="font-family: inherit;">This is why, today, I'm sharing this blog with you. I tried to make a difference. I could have made a difference. And it even makes me incredibly upset writing this that not more has been done. So, I want to highlight a few projects I've been working on, often quietly, over the years, and the responses in the hope that I can now gain some community support to take them in the right direction. </span></span></div>
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<span class="s2" style="font-kerning: none; text-decoration-line: underline;"><span style="font-family: inherit;">21 February 2018- Accessible Housing</span></span></div>
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<span class="s1" style="font-kerning: none;"><span style="font-family: inherit;">One of my regulars involves accessible housing and this one was a general petition for more accessible housing in the area.</span></span></div>
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<span class="s1" style="font-kerning: none;"><span style="font-family: inherit;">(Brief background info: I am <b>still</b> in an inaccessible house and housing allowance doesn’t cover private rent in our area)</span></span></div>
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<span class="s1" style="font-kerning: none;"><span style="font-family: inherit;">The response which was forwarded to Guy Opperman MP from the local councilor</span></span></div>
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<span class="s1" style="font-kerning: none;"><span style="font-family: inherit;">“As highlighted above, they may however not be fully adapted/wheelchair accessible but in the case of the former, which does not include provision for bungalows, <b>there may still however be an opportunity to influence the final provision which we can explore as Kate's experience clearly provides a powerful example of local need</b>”</span></span></div>
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<span style="font-family: inherit;"><span class="s3" style="color: #e7000e; font-kerning: none;">Nothing was done to follow up on this.</span><span class="s1" style="font-kerning: none;"> There still has been no accessible housing built in the area. Humbles wood built 60 council houses, none of which were accessible, with more to come (also none accessible). That's 404 houses in total built on the property with not one of them being an accessible council house. When I was part of the partnership and this was going through planning, bungalows were involved, so I'm sure with an MP's help this could have been changed.</span></span></div>
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<span class="s2" style="font-kerning: none; text-decoration-line: underline;"><span style="font-family: inherit;">8th January 2012 - Health and Wellbeing</span></span></div>
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<span style="font-family: inherit;"><span class="s1" style="font-kerning: none;">I attended a meeting after an inspection showed</span><span class="s4" style="font-kerning: none; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal;"> ‘</span><span class="s1" style="font-kerning: none;">weaknesses</span><span class="s4" style="font-kerning: none; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal;">’ </span><span class="s1" style="font-kerning: none;">in Northumberland healthcare for the needs of SEN and disabled young people (0-25). I sent a letter to Guy Opperman MP highlighting the key issues I had faced, which included getting kicked out of my high school for being in a wheelchair and the appalling (non-existent) mental health support I received leading to a month in a psychiatric unit. </span></span></div>
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<span class="s1" style="font-kerning: none;"><span style="font-family: inherit;"><span style="color: #e7000e;">Response: “I know Guy has looked at your e mail and will be replying asap” Gordon. That was it.</span> Thankfully, I took down the details of the head of care when I was at the panel and managed to get in touch with her at a later date.</span></span></div>
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<span class="s2" style="font-kerning: none; text-decoration-line: underline;"><span style="font-family: inherit;">21st November 2018 - Benefits</span></span></div>
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<span class="s1" style="font-kerning: none;"><span style="font-family: inherit;">Northumberland decided that disability benefit would count as income (one of the only counties to do this) therefor everyone’s contribution to care costs went up dramatically. I could barely cover costs for medication, equipment, special dietary requirements…ect anyways but my care costs quadrupled. And, I wasn’t the only one. I contacted Guy Opperman MP, who contacted the DWP</span></span></div>
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<span style="font-family: inherit;"><span class="s1" style="font-kerning: none;">Response from DWP via Guy: ”Because local authorities are responsible for social care, it is up to LAs if they consider PIP benefits as income, and take this into account when considering what someone is entitled to in terms of social care. <span style="color: red;">DWP doesn</span></span><span class="s4" style="font-kerning: none; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal;"><span style="color: red;">’</span></span><span class="s1" style="font-kerning: none;"><span style="color: red;">t consider PIP in terms of income with regard to eligibility for other benefits, but it is up to LAs whether they do</span> - I.e we can</span><span class="s4" style="font-kerning: none; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal;">’</span><span class="s1" style="font-kerning: none;">t stop them doing that. Therefore, it might be that you need to follow up with the local authority rather than DWP, but I can</span><span class="s4" style="font-kerning: none; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal;">’</span><span class="s1" style="font-kerning: none;">t be sure. It is just a hunch that this might be what the tweet below is referring to. However, I don</span><span class="s4" style="font-kerning: none; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal;">’</span><span class="s1" style="font-kerning: none;">t think we can follow up here and provide a full response unless we have consent from the constituent in order to look into her case specifically. Therefore, <span style="color: red;">can I leave with you to follow up and use the usual channels in order to get her consent and details if she does want Guy to look into this?”</span></span></span></div>
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<span class="s1" style="font-kerning: none;"><span style="font-family: inherit;">This, again, was not followed up. The result of this was I had to ‘prove’ my disability once again and fought for months with the authority over payments. I had to send them receipts <b>of my food</b> to prove my spending. Even now, I don’t know if this motion has changed and my benefits don’t cover my outgoings for my condition. I hear from many people who still can barely afford to live on benefits.</span></span></div>
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<u><span style="font-family: inherit;">Coronavirus</span></u></h3>
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<span style="font-family: inherit;">It's just been in the news that a disabled man starved to death during the coronavirus lockdown. And, he won't be the only one. The sheer neglect disabled people had to suffer during this pandemic is unimaginable and what upsets me the most is we told you. I repeatedly had warned about the difficulties disabled people were facing and had no replies. </span></div>
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<span class="s2" style="font-kerning: none; text-decoration-line: underline;"><span style="font-family: inherit;">12th March 2020 - Coronavirus</span></span></div>
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<span class="s1" style="font-kerning: none;"><span style="font-family: inherit;">Example of messages include (beginning of covid-19):</span></span></div>
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<span style="font-family: inherit;"><span class="s1" style="font-kerning: none;"></span><br /></span></div>
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<span style="font-family: inherit;"><span class="s1" style="font-kerning: none;">“Hi Guy (and team), A quick one about the Coronavirus. There have been absolutely no guidelines about old and vulnerable people which is appalling. I</span><span class="s4" style="font-kerning: none; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal;">’</span><span class="s1" style="font-kerning: none;">m busy not just campaigning, but answering messages around the clock now to try help support people as to what to do (despite not being a medical professional... so I feel like we need some input!) Is it possible that we can team up, with the help of someone in the medical field, to produce some sort of infographic (I don</span><span class="s4" style="font-kerning: none; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal;">’</span><span class="s1" style="font-kerning: none;">t mind creating) for Northumberland about what to do if you</span><span class="s4" style="font-kerning: none; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal;">’</span><span class="s1" style="font-kerning: none;">re old/vulnerable? People are really struggling.</span></span></div>
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<span class="s1" style="font-kerning: none;"><span style="font-family: inherit;">Major problems being:</span></span></div>
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<span class="s1" style="font-kerning: none;"><span style="font-family: inherit;">- What happens if a carer in the family gets ill<span class="Apple-converted-space"> </span></span></span></div>
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<span class="s1" style="font-kerning: none;"><span style="font-family: inherit;">- what happens to people who need 24/7 care and they get ill</span></span></div>
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<span class="s1" style="font-kerning: none;"><span style="font-family: inherit;">- should we be taking extra measures already like not going out</span></span></div>
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<span class="s1" style="font-kerning: none;"><span style="font-family: inherit;">Etc</span></span></div>
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<span style="font-family: inherit;"><span class="s5" style="color: black; font-kerning: none; text-decoration-line: underline;">Response: </span><span class="s1" style="font-kerning: none;">We’re working to ensure that the most up-to-date information that we can obtain is featured on Guy's website: <a href="http://www.guyopperman.co.uk/coronavirus"><span class="s6" style="color: #e7000e; font-stretch: normal; line-height: normal;">www.guyopperman.co.uk/coronavirus</span></a>.</span></span></div>
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<span class="s1" style="font-kerning: none;"><span style="font-family: inherit;">There was no information on here which helped at all. In fact, he provided shielding information on week 11.</span></span></div>
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<span style="font-family: inherit;"><span class="s1" style="font-kerning: none;"></span><br /></span></div>
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<span class="s2" style="font-kerning: none; text-decoration-line: underline;"><span style="font-family: inherit;">18th May 2020 (Mid-pandemic for shielders)</span></span></div>
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<span class="s1" style="font-kerning: none;"><span style="font-family: inherit;">Points I highlighted in my email (it was a long one)</span></span></div>
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<ul>
<li><span class="s1" style="font-kerning: none;"><span style="font-family: inherit;">Scope has found that 28% of disabled adults feel forgotten by the Government.<span class="Apple-converted-space"> </span></span></span></li>
<li><span style="font-family: inherit;">I wanted Guy Opperman MP to read the Scope report and raise these issues with the Government and in Parliament. </span></li>
<li><span style="font-family: inherit;">People are contacting me daily to say they have to choose between getting food or heating. They also are struggling to get said food, especially since people on PIP/ESA aren<span class="s4" style="font-kerning: none; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal;">’</span><span class="s1" style="font-kerning: none;">t applicable for the £20 a week increase like those on other benefits.</span></span></li>
<li><span style="font-family: inherit;">People have been told they need to sign DNR<span class="s4" style="font-kerning: none; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal;">’</span><span class="s1" style="font-kerning: none;">s, can</span><span class="s4" style="font-kerning: none; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal;">’</span><span class="s1" style="font-kerning: none;">t even pay at checkouts now because the new social distancing restrictions aren</span><span class="s4" style="font-kerning: none; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal;">’</span><span class="s1" style="font-kerning: none;">t accessible, disability is once again bottom of the pile.<span class="Apple-converted-space"> </span></span></span></li>
<li><span style="font-family: inherit;">Care has a huge issue, I myself have had to stop carers because of my risk my parents now have a 24h care job (usually done by 2 agency carers) plus managing their job, caring for my sister and <span class="s1" style="font-kerning: none;">nephew</span></span></li>
<li><span style="font-family: inherit;"> It was 5 weeks into shielding my care manager got in touch to ask if I was ok and to update my care need - which isn<span class="s4" style="font-kerning: none; font-stretch: normal; font-variant-east-asian: normal; font-variant-numeric: normal; line-height: normal;">’</span><span class="s1" style="font-kerning: none;">t easily met. 11 weeks in when the shielding service got in touch to ask if I had food and medication. I didn't receive any food parcels.</span></span></li>
<li><span style="font-family: inherit;">I also would like to ask for extra things to be put in place after the pandemic such as mental health support, extra support/relief for carers, and campaigning for disabled rights.</span></li>
</ul>
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<span style="font-family: inherit;"><span class="s2" style="font-kerning: none; text-decoration-line: underline;">Response</span><span class="s1" style="font-kerning: none;">: We’ve passed your e-mail on to Guy, in order to ensure that he is aware of your specific requests, as well as your detailed comments regarding this important matter.</span></span></div>
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<u>Moving Forward</u></h3>
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I owe an awful lot to Northumberland, but most of that is the fabulous <u>community</u> that has rallied around me when I have needed support. I feel used by some of the higher authorities. I was made 'Community Champion' in 2018, and yes, I put an awful lot into the community, but I wouldn't have accepted the award if I knew I was still going to be ignored. </div>
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I've been to countless events where people are only interested in getting a photo of my assistance dog, I've been told I'm 'too famous' for my local community and the real truth is, I don't engage if I don't get treat correctly. I'm getting tired now, and this is what this blog is really about. </div>
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I haven't lost my passion for activism, but I can't do this alone. In the past week, I have phoned up doctors to try to get medication sorted for vulnerable people and even Sainsburys so someone could get their shopping sorted. I know there are many volunteers also doing this, but the fact of the matter is, this shouldn't be the case and we should have more support.</div>
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So, you can help me. Please, contact your MP and tell them about the issues disabled people are facing right now.1 in 4 disabled people feel forgotten by the government and Scope has a template where you can email your MP, just don't forget to put your address in there! <a href="https://www.scope.org.uk/campaigns/disabled-people-and-coronavirus/">https://www.scope.org.uk/campaigns/disabled-people-and-coronavirus/</a>. Put pressure on your MP if they aren't responding too, for too long have I let my replies go unanswered. </div>
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On a personal note, know your worth. I feel like I've let everyone down. One, for not getting answers and for pushing hard enough. But also, for letting things get to this stage before I spoke out. For years now I've been fighting to get enough of a name for myself so I could have a voice. Now I'm using that voice for the right things. </div>
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Kate x</div>
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Follow my socials: @katestanforth</div>
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kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-32826531900898331722020-06-13T13:27:00.000-07:002020-06-13T13:27:40.052-07:00Life as a Disabled Dance Teacher<div style="text-align: center;">
<i>As part of my new 'disability awareness' series on instagram, I thought I would share some of the things I have been told as a disabled dance teacher</i></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiVKmzJUNxThOGg6RwIrpwpYkTw4PBxN6pk-jtN2TKlFkdH_NVLNXcRmh1azLmYRG0dRsijqmb5KnPIyAtEvf-cg7rUwvjPGQelvyax9X_6gHnOxNj2J68LX9LJCqWB1lMs0lUYyFOewQlK/s1600/IMG_3368.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1440" data-original-width="1440" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiVKmzJUNxThOGg6RwIrpwpYkTw4PBxN6pk-jtN2TKlFkdH_NVLNXcRmh1azLmYRG0dRsijqmb5KnPIyAtEvf-cg7rUwvjPGQelvyax9X_6gHnOxNj2J68LX9LJCqWB1lMs0lUYyFOewQlK/s320/IMG_3368.JPG" width="320" /></a></div>
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<span class="JsGRdQ" style="color: #2e2e2e;"><b>'You can't teach in a wheelchair'</b></span><br />
<span style="color: #2e2e2e;">Actually, I can. My wheelchair doesn't limit me, it enables me. I have had to adapt my teaching style so I now use more vocal commands and often ask for a demonstrator. That doesn't affect my teaching ability in the slightest.</span><br />
<span style="color: #2e2e2e;"><br /></span>
<span class="JsGRdQ" style="color: #2e2e2e;"><b>‘Dance is only for specific people’</b></span><br />
<span class="JsGRdQ" style="color: #2e2e2e;">I would like to make dance accessible for all who would like to enjoy it, and, who it's safe to participate in. Dance doesn't have to be 2 hours en pointe. It can be putting some music on and moving your wheelchair, your wrists or even just your finger. It's time we rewrite the word 'dance'.</span><br />
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<span class="JsGRdQ" style="color: #2e2e2e;"><b>‘It's easy teaching dance’</b></span><br />
<span class="JsGRdQ" style="color: #2e2e2e;">Absolutely wrong. I teach for 45mins a week and it floors me for days afterwards. I put in a lot of prep work and I always stay to chat at the end of my lessons too. It took me many years to get my qualifications and I have major respect for all dance teachers. It definitely isn't as easy as people think, especially being a disabled teacher.</span><br />
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<span class="JsGRdQ" style="color: #2e2e2e;"><b>'Brands choose you because of your disability'</b></span><br />
<span class="JsGRdQ" style="color: #2e2e2e;">Yes. I am chosen as a disabled dancer. However, I have worked with brands who have chosen me because they are inclusive, and unfortunately, I've worked with some where I've been nothing more than a tick box. I am a talented disabled dancer though who will put in 100% to every collaboration.</span><br />
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<span class="JsGRdQ" style="color: #2e2e2e;"><b>'You might not always be able to dance'</b></span><br />
<span class="JsGRdQ" style="color: #2e2e2e;"><span class="JsGRdQ">I have a genetic condition which won't get better. My condition could deteriorate at any point, and yes, I could lose the ability to dance, or, it could become too dangerous for my health to do so. I have to be extremely careful how much dancing I do and how I do it, but I take every day as it comes.</span><span class="JsGRdQ white-space-prewrap"></span></span><br />
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<span class="JsGRdQ" style="color: #2e2e2e;"><span class="JsGRdQ"><i style="caret-color: rgb(0, 0, 0); color: black; text-align: center;">I fully encourage everyone to get involved in dance and hope that the dance industry will continue to become more accessible. If you'd like to follow my dance journey, or take part in free inclusive sessions, go to my instagram @katestanforth</i></span></span><br />
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<span class="JsGRdQ" style="color: #2e2e2e;"><span class="JsGRdQ"><span style="caret-color: rgb(0, 0, 0); color: black; text-align: center;">Kate x</span></span></span>kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-44645362766606641182020-06-13T03:19:00.001-07:002020-06-13T03:34:26.571-07:00My Canine Carer<div style="font-family: "Helvetica Neue"; font-stretch: normal; line-height: normal; text-align: center;">
<span style="-webkit-font-kerning: none;">2 years ago, a black Labrador Retriever, bounded into my life. Never did I think that four paws could change my life in such a dramatic way, but (super) Spencer was the start of my newfound independence.</span></div>
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<span style="font-kerning: none;">In 2008, I suddenly went from being an active ballet dancer to having complex health issues and needing round-the-clock care. When my family struggled to cope with my care needs, we decided to get agency carers in which allowed my parents to continue working. I’ve always been fiercely independent and when I saw an advert for Canine Partners, I decided to apply for an assistance dog. 2 years later, I was matched with Spencer and after an intensive training course, we welcomed him to our home</span></div>
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<span style="font-kerning: none;">Some of the tasks Spencer helps me with include fetching items like my medication bag and water, alerting people in the house if I’m unwell, bringing the phone to me when it rings, helping me get undressed, and even helping to change my bed! Another useful task he picked up but wasn’t taught by Canine Partner’s, is alerting me when my blood pressure is low - that’s how in tune he is with my body!</span></div>
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<span style="font-kerning: none;">Spencer has been especially useful during the lockdown. Usually, I have both my family, agency carers, and Spencer to help me. However, due to my risk, I have stopped my agency carers for now but Spencer is still able to help out with daily tasks which have been vital to both my independence and wellbeing. Having a smiley dog wake you up every morning to help you get ready couldn’t be a better start to your day!</span></div>
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<span style="-webkit-font-kerning: none;">There is no doubt this pup has changed both mine and my family's life significantly. It’s amazing what these dogs can do and I don’t know where I would be without Super Spencer; four life-changing paws.</span></div>
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<span style="-webkit-font-kerning: none;">Kate (and Spencer) xx</span><br />
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<span style="-webkit-font-kerning: none;">Follow Spencer with weekly videos - @spencerandkate</span></div>
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<span style="-webkit-font-kerning: none;">Follow Me - @katestanforth</span></div>
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kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-69363532783707237032020-06-10T11:03:00.000-07:002020-06-10T11:03:59.843-07:005 Things Disabled People Are Tired of Hearing<div style="text-align: center;">
<i>I have been overwhelmed by the amount of activism online at the moment, especially regarding Black Lives Matters. If you'd like to see my post on this, please visit my instagram where I have uploaded a dedicated video. It's also really made me think about my own campaigning and how I would like to use my socials to promote change. So, I'm hoping to try upload some slightly different content in the hope to help guide others, from the little bubble in my home.</i></div>
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Disabled people have to deal with prejudice on a daily basis and I don't think this is something you can fully understand unless you care full time for someone with a disability or you are disabled yourself. I wanted to share 5 of the top comments I get, why they aren't useful and what you should do instead. Sometimes, people don't realise what they're saying is offensive to us, so I think it's important to educate.</div>
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<b>"What is wrong with you?"</b><br />
"What's wrong with you?" or "What happened to you?" are questions disabled people are faced with on a daily basis. They imply having a disability is not normal. What you should say is something like "Would you mind telling me a bit about your condition?"<br />
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<b>"Can I have a go?"</b><br />
Our disability equipment is our lifeline and not a toy. No, you can't race my scooter up the corridor nor can you borrow my crutches to get you priority queueing at Alton Towers. Equally, sitting on my aids or moving them without my permission is a no.<br />
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<b>"Have you tried..."</b><br />
Unless you are a qualified medical professional, and I request information, please do not give me medical advice. Your google search about how some herbal tea and yoga is going to cure me isn't useful and spreads misinformation to others about my condition.<br />
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<b>"You don't look disabled"</b><br />
Disabled - having a physical or mental condition that limits movement, senses or activities. Many disabilities are invisible and fluctuate. Disabled doesn't have a 'look' and by implying this, you are insulting all of us.<br />
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<b>"I've seen you walk"</b><br />
People have to use wheelchair for many reasons, including fatigue, dizziness and injury-prone joints. Ambulatory wheelchair users (people who can walk in some circumstances) are not faking their condition. They may have to use their mobility aids on different days.<br />
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Are you disabled and have received any of these comments? Do you have any more to add to the list?</div>
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Kate x</div>
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<br />kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-60676347120545476202020-05-08T15:23:00.001-07:002020-05-08T15:23:22.216-07:00The Pressures of Lockdown<div style="text-align: center;">
<i>I'm 2 months into my lockdown journey, with at least 1 more to go, and it certainly has been challenging. Not only has the physical aspect of being in isolation been difficult, I've definitely found the pressure of it pretty intense too.</i></div>
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<span style="font-size: x-small;">Photo by Katie Meehan</span></div>
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The Pressure of Being Productive</h3>
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The first day into isolation, I set out a list of tasks I wanted to complete. From sorting my wardrobe out to reorganising my paperwork, I had plenty of jobs to fill my time with. Similar lists were cropping up on social media and before long, my feed was filled with photo evidence of people's productivity. I felt like even though I usually spend the majority of my time at home, I now needed to join in with the new production pandemic. </div>
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The 8pm Judgement</h3>
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An incredible initiative which has blossomed through this is the 8pm clap for Key Workers. Personally, this is still something which I enjoy doing every week, but I put huge pressure on myself to get outside when I'm unwell. With my chronic illnesses, my health varies a lot, but I've almost crawled to the door to do the 8pm clap sometimes. I know a lot of others also worry about the judgement for not joining in for the clapping, thankfully I live in a lovely village so I'm sure if I didn't go out they wouldn't mind, but it is another internal pressure that has developed from lockdown.</div>
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Learn More</h3>
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One last 'trend' is learning a new hobby or skill. Whilst I'm not against learning how to crochet or reading a new book, there's people taking this to the extreme. My advice is if you'd like to be productive, or try something new, set small, achievable goals. Or, break bigger goals down. This will then give you the least amount of pressure but then still the sense of achievement at the end.</div>
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<i>I completely understand routine is important and productivity definitely has it's place within this. But what I'm trying to say is that we don't have to be <u>over-productive</u>. We are all going through difficult times right now which might not be the best time to put all these extra pressures on yourself. So be kind to yourself. Try not to compare to what others are doing. And, set small, achievable goals.</i></div>
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Stay Safe,</div>
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Kate x</div>
kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-55242141816453941582020-04-19T12:32:00.000-07:002020-04-19T12:43:07.726-07:00Isolation Essentials<div style="text-align: center;">
For many of us, our routines have completely been turned upside down. You would think that this wouldn't impact the chronic illness world too much as many spend vast amounts of time already isolated, but, it has created even more obstacles. </div>
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For me, we have now stopped my agency carers coming over to minimise the risk of bringing the virus into the home which means my parents, who are now working from home, have had to adjust to a new enhanced care routine. That being said, if they did become unwell, I'm trying to have a plan in preparation for how I would be able to cope and this involved getting some new items.</div>
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I am fiercely independent, so many of these items will help me in the future anyways manage my own tasks; an extra added bonus! I should add, these might be useful for those who aren't chronically ill and starting to work from home too!</div>
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<i>Some of the recommended products below have an affiliate link, marked with AF, meaning I earn a very small percentage if you were to purchase an item. This comes at no extra cost to you!</i><br />
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<span style="font-size: large; font-weight: 700;"><u>Care</u></span></h2>
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1litre Hand Sanitiser Gel - £15.99</h3>
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<a href="https://www.safesol.co.uk/product/1ltr-hand-sanitiser-gel-70-alcohol-suitable-for-combating-coronavirus/">https://www.safesol.co.uk/product/1ltr-hand-sanitiser-gel-70-alcohol-suitable-for-combating-coronavirus/</a></div>
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Hand sanitiser is like gold dust at the moment, but Safe Sol have a 1litre bottle available for £15.99 which is one of the best value ones I've found. I've purchased one so when my carers return we can decanter it into smaller bottles, so you could do this if you also have multiple carers looking after you. </div>
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The Breville HotCup Hot Water Dispenser - £30 (AF)</b></h3>
<span style="font-weight: normal;">For those who cannot manage kettles and </span><i style="font-weight: normal;">love</i><span style="font-weight: normal;"> a good cuppa, this is an essential. It holds 1.5l (although you can get a 2l version which is a bit more pricey) and </span><span style="font-weight: 400;">dispenses</span><span style="font-weight: normal;"> a cup of hot water safely. You may need help to fill up the device but it would last you all day (unless you are me, then that will do a few hours!)</span></div>
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<iframe frameborder="0" marginheight="0" marginwidth="0" scrolling="no" src="//ws-eu.amazon-adsystem.com/widgets/q?ServiceVersion=20070822&OneJS=1&Operation=GetAdHtml&MarketPlace=GB&source=ac&ref=qf_sp_asin_til&ad_type=product_link&tracking_id=katestanforth-21&marketplace=amazon&region=GB&placement=B001L5SSGQ&asins=B001L5SSGQ&linkId=52b8fd15be971aff51fe28df179de520&show_border=false&link_opens_in_new_window=false&price_color=333333&title_color=0066c0&bg_color=ffffff" style="height: 240px; width: 120px;">
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<span style="font-size: 18.72px; font-weight: 700;">Reusable Muslin Face Cloths - 12pack £8.99 (AF)</span></h3>
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I can't manage getting washed everyday, but it's good to freshen up. I normally would use baby wipes, but my friend Katie wrote a fab post (you can see <a href="https://katiemeehan.co.uk/2020/03/easy-ways-to-be-more-sustainable-with-your-beauty-routine-ad/" target="_blank">here</a>) as part of the #BinTheWipes campaign about products to use instead of them. So, I'm investing in face cloths which I can put in the wash, with the added bonus I can soak in water and put in the fridge/freezer to help with my migraines and headaches.</div>
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<span style="font-size: large; font-weight: 700;"><u>Comfort</u></span></h2>
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<span style="font-size: 18.72px;">King sized, teddy feel, blanket - £16.48 (AF)</span></h3>
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<iframe frameborder="0" marginheight="0" marginwidth="0" scrolling="no" src="//ws-eu.amazon-adsystem.com/widgets/q?ServiceVersion=20070822&OneJS=1&Operation=GetAdHtml&MarketPlace=GB&source=ss&ref=as_ss_li_til&ad_type=product_link&tracking_id=katestanforth-21&language=en_GB&marketplace=amazon&region=GB&placement=B0764KFVDY&asins=B0764KFVDY&linkId=4e9b5499851c10486410bee1cc76d2b8&show_border=true&link_opens_in_new_window=true" style="height: 240px; width: 120px;"></iframe>
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I am currently living life snuggled up in a teddy bear feel blanket and I have absolutely no regrets. It makes me feel safe, comfy and warm. You won't be disappointed in this one.</div>
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<span style="font-size: 18.72px;">U-Shaped Teddy Bear Feel Pillow - Various Prices </span></h3>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIsnM-wBdv0mcEyjcwIS0rpvSwdEV1-lMqz0NUuR7U0vZ5xzyt3eEd9DtbgLfCXEK11eQ6qnDJCjrauGF3cvPNySfER0H3vxbCNG-YxCAhaYvJBNk_DetEuJEgmZqf0PSnpxLVIQDcU6kL/s1600/teddy.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="225" data-original-width="225" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIsnM-wBdv0mcEyjcwIS0rpvSwdEV1-lMqz0NUuR7U0vZ5xzyt3eEd9DtbgLfCXEK11eQ6qnDJCjrauGF3cvPNySfER0H3vxbCNG-YxCAhaYvJBNk_DetEuJEgmZqf0PSnpxLVIQDcU6kL/s1600/teddy.jpeg" /></a></div>
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I have a fantastic U-shaped pillow which provides me with support both in and out of bed. Mine is a teddy bear feel (so really soft) and I got it from Costco. Unfortunately, they don't stock it any more. You can get similar ones off places like Amazon, but I didn't want to personally recommend one I haven't tried as I know I one bought a cheap one and all the stuffing fell to the bottom, so beware when buying cheap ones!</div>
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<span style="font-size: 18.72px;">Soft Feel Pyjamas - Various Prices</span></h3>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgmfQkqysEl25CZyx3hZEvPf9guJTaH77QipI1C-0dwxIxRapD5t5QED09aaCW_9OKAxyzWSrr9fwZRRx46rI_aLFQgRSHvgoCxomjKVOp28c3PDXltx3Ub_ouO6wSKehAwlIDzyoJObpia/s1600/pjs2.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="177" data-original-width="144" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgmfQkqysEl25CZyx3hZEvPf9guJTaH77QipI1C-0dwxIxRapD5t5QED09aaCW_9OKAxyzWSrr9fwZRRx46rI_aLFQgRSHvgoCxomjKVOp28c3PDXltx3Ub_ouO6wSKehAwlIDzyoJObpia/s1600/pjs2.jpeg" /></a></div>
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<span style="font-size: 18.72px;"><span style="font-size: small;">I live in pyjamas anyways, but now even more so. I really like the 'soft feel' pyjamas which are also loose fitting so don't give me too much pain when wearing. A lot of them look like joggers too, so you can also get away with wearing them in the garden too! Best places to look are M&S and Next.</span></span></div>
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<span style="font-size: large; font-weight: 700;"><u>Entertainment</u></span></h2>
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<span style="font-size: 18.72px; font-weight: 700;">Fire TV Stick with Alexa Voice Control - £39.99 (AF)</span></h3>
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The Fire Stick is something I personally love. With spending so much time in bed, but being able to watch things I've seen before as one of my lower energy activities, I subscribed to Disney Plus and Netflix (extra costs) to stream through my Fire Stick to my TV. You can get a number of free features though and I should add the voice control is especially energy conserving. </div>
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<iframe frameborder="0" marginheight="0" marginwidth="0" scrolling="no" src="//ws-eu.amazon-adsystem.com/widgets/q?ServiceVersion=20070822&OneJS=1&Operation=GetAdHtml&MarketPlace=GB&source=ac&ref=qf_sp_asin_til&ad_type=product_link&tracking_id=katestanforth-21&marketplace=amazon&region=GB&placement=B0791RGQW3&asins=B0791RGQW3&linkId=1eb24862fdbb19bb881da9fc509b3031&show_border=false&link_opens_in_new_window=false&price_color=333333&title_color=0066c0&bg_color=ffffff" style="height: 240px; width: 120px;">
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Disney Plus - £5.99 a month</h3>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEibhNH7QGgITx-apX2eMj_jSxJ02E6B8hZVX8ByaWKHc8UuOpIz8mSwJogUJttWCpCYSpoIGj-HVhSAS8Vft9G68C2tqgumy2Xxr0lS03Z8AEk_IjiBnE3wclQajpUXWIEx9t65ojCZqfGP/s1600/disneyplus.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="127" data-original-width="397" height="102" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEibhNH7QGgITx-apX2eMj_jSxJ02E6B8hZVX8ByaWKHc8UuOpIz8mSwJogUJttWCpCYSpoIGj-HVhSAS8Vft9G68C2tqgumy2Xxr0lS03Z8AEk_IjiBnE3wclQajpUXWIEx9t65ojCZqfGP/s320/disneyplus.jpeg" width="320" /></a></div>
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<a href="https://www.disneyplus.com/en-gb/">https://www.disneyplus.com/en-gb/</a></div>
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I am certainly a Disney lover, so decided it was worthwhile taking out a subscription for Disney Plus whilst isolating at home. I find Disney movies fairly 'low energy' to watch as I've seen most of them before and it has the added bonus that you can share on 3 devices so my family can enjoy it too. </div>
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Audible - £7.99 a month (30 day free trial)</h3>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEie6cBmu6l1BLll1XUN5a-ybQD4TalE3quqfH9kH-Bb8bXXmB4xvcIKp1IEeRBfaYogpUpmlLyHD38U4_Fetl6FOzek9kS-szkAoOgZf4RAztlkprgC5oTXLtVzTpwT5JzCB8dGhedGTrUV/s1600/audible.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="168" data-original-width="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEie6cBmu6l1BLll1XUN5a-ybQD4TalE3quqfH9kH-Bb8bXXmB4xvcIKp1IEeRBfaYogpUpmlLyHD38U4_Fetl6FOzek9kS-szkAoOgZf4RAztlkprgC5oTXLtVzTpwT5JzCB8dGhedGTrUV/s1600/audible.png" /></a></div>
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<a href="https://www.audible.co.uk/">https://www.audible.co.uk/</a></div>
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I'm not a massive fan of books, but I have subscribed in the past to audible to listen to books and really enjoyed it. There are other sites which are free but contain limited books, so it is worthwhile having a look around, but it is a good choice for book lovers!<br />
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<b>I really hope you are all doing as okay as possible and staying safe. All my love, Kate x</b></div>
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kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-53096749000817025162020-04-14T12:22:00.001-07:002020-04-14T12:22:47.890-07:00From Unemployed to Vital Support<div style="text-align: center;">
When I first became unwell with ME at the age of 14, I never thought I would be able to manage any type of job. For years, my focus was simply getting through the day. But, a few years ago when my health hit a more stable period, I was determined that I wanted to work.</div>
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The issue of gaining employment with a disability is still a major one, with many employers not willing to make adaptations or simply hire someone with a disability. I went through countless applications and interviews, even to the point where in one interview I was asked if I would 'really need to bring my assistance dog' into work and they happily voiced the awkwardness of having to change (their interior) if they were to hire me. The frustrating thing is, with the Covid-19 outbreak, many employees have now been given the opportunity to work from home which is one adaptation people with chronic illnesses ask for, proving that it <b>can</b> easily be done. It's just employers simply aren't giving those with chronic illnesses/disabilities the opportunity.</div>
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In Summer 2019 I started working for the ME Association as one of their social media managers. I work remotely from home and it's a flexible contract so I can adjust my hours. I worked for 5 hours a week, splitting it up over a number of days so I wouldn't get too tired. Of course, working for an organisation who understands your own condition is very useful, so if I'm poorly everyone is very understanding. For many months, things ticked over and we worked on various projects... Until Covid-19 hit.</div>
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Outside of work, I do a lot of campaigning, especially in the disability sector. The last day before 'lockdown' I was speaking at a open conversation night at my local pub and I really enjoy my advocacy work. Because I have a number of other complex conditions, I'm on the 12 week 'shielding' list so stopped going out, even for 'essentials', long before the restrictions tightened. I, like many others, have had to completely change the way I campaign, work and manage at home. And it hasn't been easy.</div>
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The first hurdle was my parents had to make the decision to stop going to work, before the restrictions came into place. We had to split up the household and cancel my daily carers as the risk was simply too high. This means that my parents have to do their jobs at home, then also do a care role which usually would take 2 carers. They are also supporting my sister with her online college work and home schooling my nephew. So really, between 2 of them, they are doing 6 jobs. </div>
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The next hurdle was my work. We had an <b>unbelievable </b>increase in demand in service for the ME Association as soon as the Covid-19 outbreak started. I decided to take on more hours to help out and we all as a team are working incredibly hard to try help everyone who comes to us. Within this role, we get a number of issues arise, like say people with ME being unable to get online shopping slots. My usual campaigning route is very, well, vocal. I like doing things in person because I get a better result. But, campaigning for change for things like this is emotional and frustrating. I've spent hours on the phone to Sainsbury's head department, I've wrote to MP's, we've collated letters to parliament, we've produced guides but I still don't feel like I'm doing enough because we don't have an answer. It's heartbreaking sending replies when we can't help much and it definitely has been a very emotional few weeks.</div>
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I know there are so many more in situations like this who are feeling overwhelmed by the current pandemic. It's hard to see people complaining about being isolated for 3 weeks when many people with chronic health conditions live in isolation for years. It's hard people complaining about working at home when really people with chronic illnesses would absolutely <b>love</b> the opportunity to be given remote, flexible working. And it's hard to see that yet again, we just seem to be bottom of the pile. </div>
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I still can't quite get my head around how 9 months ago I was virtually unemployed (I still taught 1 short dance lesson) but now I'm providing vital support to vulnerable people. Whilst being an 'extremely vulnerable' person. I wish more organisations and the government would see this and see we are worthy. We are making a contribution to society and will continue to fight for change.</div>
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I promise I won't stop campaigning and please know that I'm working hard behind the scenes, please look after yourself and stay safe.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgrgAmZXcvpFf7TsfdD0t-J2bTfM_3zsZkEkZkIlkyLQTKimg7c7M4aAE8SNPcIU7sAGuck9srRUxGzG5lKkJb4lPwYqSNCYkF8DNjtp5WjcBpLdjCO-EkvdkU0EY7pztEc3CxwOWc1d3p-/s1600/Quilliams.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1066" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgrgAmZXcvpFf7TsfdD0t-J2bTfM_3zsZkEkZkIlkyLQTKimg7c7M4aAE8SNPcIU7sAGuck9srRUxGzG5lKkJb4lPwYqSNCYkF8DNjtp5WjcBpLdjCO-EkvdkU0EY7pztEc3CxwOWc1d3p-/s320/Quilliams.JPG" width="213" /></a></div>
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Photo: <a href="https://katiemeehan.co.uk/" target="_blank">Katie Meehan</a></div>
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Kate x</div>
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kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-81630641337583859412020-03-29T14:09:00.001-07:002020-03-29T14:09:27.950-07:00COVID-19 Made The Dance World Accessible<div style="text-align: center;">
<i>I'm a huge campaigner for making the arts accessible, particularly the dance industry. Being a disabled dancer, teacher and choreographer I strive to make opportunities for people who would love to also take part in the art. My journey has certainly not been easy. But during the Coronavirus pandemic, I have definitely seen the industry change and I can only hope it's the start of a continuing process.</i></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi95Ubii8oZqY6jhNtDc8cOkWVNYo6GVbQhlFrwetdsmF1E1o9mBYg_VjKcHwz-mvtybxFjZPDPOgU10_r0KnzGj7KdeXxukou17LGdFCpmdXklT6cJs_GJO0frgU4nTgC9dc0KYQkKFEOV/s1600/Kate+and+Tilli.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="640" data-original-width="960" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi95Ubii8oZqY6jhNtDc8cOkWVNYo6GVbQhlFrwetdsmF1E1o9mBYg_VjKcHwz-mvtybxFjZPDPOgU10_r0KnzGj7KdeXxukou17LGdFCpmdXklT6cJs_GJO0frgU4nTgC9dc0KYQkKFEOV/s320/Kate+and+Tilli.jpg" width="320" /></a></div>
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<span style="font-size: x-small;">Photo by Hannah Todd Photography. Myself and Tilli Conway</span></div>
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The Barriers </h3>
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The barriers I've faced re-entering the dance world, but as a disabled person, are phenomenal. Getting adaptations for teaching exams are the least of the concerns when out in the 'real world', the industry is just not ready. </div>
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Accessing a dance studio which is accessible is nearly unheard of. One which has the correct facilities which involves disabled toilets, changing, easy parking and no stairs. Currently, at the studio I teach at, I have a parent carry my wheelchair up some stairs then help me up. It's <i>demoralising. </i>Not to mention, the 3 days it puts me in bed. It's not the studio's fault; it's simply because there aren't accessible studios or easy modifications available. </div>
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Becoming a disabled teacher & dancer was always extra difficult too. You are constantly judged because you are in a wheelchair. I went to cover a class and I had a manager say she needed to 'shadow' my session to make sure everyone was enjoying themselves. No-one else that day had this treatment. Thankfully, where I teach now fully trusts my abilities and the fact I've danced on TV helps back me up in any situation which may arise. But, I shouldn't have to justify myself. I have the same qualification everyone else has.</div>
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I have to invest in thousands of pounds more of equipment, mainly being a sports wheelchair to teach. I'm currently saving for a new one, as my current one isn't safe, but if disabled people want to dance and are over 18 there is little (or no!) funding to access suitable wheelchairs for both dancing or teaching. Other equipment I need that others may not is a bluetooth system, a phone stand for my wheelchair, a headset and a PA for each session. </div>
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Finally, many classes are just not accessible. People contact me daily and say 'do you know if there's a wheelchair ballet class in Manchester' and there aren't many specific disabled classes set up. So, I always advise going along to an able bodied class and adapting it yourself. But, that requires the studio being accessible and the teacher allowing it. I've had many people being turned down because they are in a wheelchair and it's just not right. If you have a class and an accessible studio, with a disabled dancer who wants to join, <i>please allow them to come.</i> You can always contact me about how to adjust classes.</div>
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The Coronavirus and the Dance World</h3>
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I started off putting inclusive dance sessions online on Instagram every week, then saw big studios like <a href="https://www.basedancestudios.com/" target="_blank">Base</a> had their regular choreographers providing free sessions every day on their own feeds. I've always wanted to take a class at Base, but the fact it was now online, free and I could do it from home was <i>amazing.</i> The beauty of this is that the live videos are saved for 24h too, so if you aren't feeling well when the Live class is taking place, you could always take part the next day. I've took part in a few classes now, including The Greatest Dancer star Ainsley Rickett and it's been incredible for me. I wouldn't usually have access to things like this, as there are very limited classes in my area, so I've had a brilliant week.</div>
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Dance stars such as Darcey Bussell and Oti Mabuse are streaming online sessions. More children, and adults, are now able to access professional dance sessions and are making it part of their daily routine. Theatres such as <a href="https://www.sadlerswells.com/whats-on/2020/digital-stage/" target="_blank">Sadler Wells</a> are providing full length performances, workshops and even virtual tours. This isn't just revolutionary for people who have chronic illnesses who can't leave the house to attend things like classes or productions. This is ideal for those in poverty too, who couldn't afford to see multiple (or any!) theatre productions or pay for dance classes. </div>
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I had now switched all my 'normal' sessions to online ones. These are all Live and online, but I have the option to pre-record if I'm not feeling well. The ability to pre-record sessions is something which I wouldn't be able to do at a studio, so is a nice 'fall back plan' for me if I'm not feeling my best and allows me to make more sensible decisions about my health. I'm also able to keep in touch with more students, as one of my students I train requires an hours drive to a studio whilst linking up via video call takes seconds, so again this saves me so much energy. Of course, it isn't the same as teaching in person and there is a massive issue of space, but I'm enjoying adapting (yet again) to a new situation.</div>
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The Future</h3>
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As the pandemic carries on, I predict the dance world will continue to grow more online. I wouldn't be surprised if there are more events, festivals, workshops and performances streamed throughout the next few months. My hope though, is that after this is over, organisations and instructors consider making their sessions accessible for all. Whether that's welcoming all abilities to class, streaming a session a week so people can join in at home or helping those with disabilities access the arts in your area. There is a clear need for this and I hope the dance world will see this.</div>
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Kate x</div>
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kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-19854398067007823112020-03-17T13:21:00.001-07:002020-03-17T13:21:03.857-07:00I am the vulnerable. I am worthy. <div style="text-align: center;">
<i>The world is going through a rather </i><i>scary and uncertain time right now. I haven't felt like blogging because I have been rather overwhelmed by it all. I've wanted to help, but being high risk I'm now confined to my home. I've been getting angry at how little guidelines there have been for disabled people & carers so have been campaigning behind the scenes hard. But, I've decided I want to document my thoughts through this pandemic, so hold on for this one...</i></div>
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<i>Disabled People Are Still Seen As Second Class Citizens</i></h3>
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The first lot of news headlines hits UK newspapers about COVID-19. The country was told not to worry as COVID-19 would "only affect over 70 and the vulnerable". What about us? I am one of the "vulnerable" and I can hand on heart say that my life is just as precious as anyone else. <b>I want to live. </b>Then, the government set out their first lot of guidelines which completely ignored disabled/vulnerable people. I spent multiple (almost) all-nighters trying to answer questions from worried followers and source information on what we should be doing. A 25 year old, with no medical qualification whatsoever, was busy trying to help people who were worried, scared and potentially at risk. The first person to die in the UK from COVID-19 was 5th March 2020. The first proper advice I could find for vulnerable people was the 15th March 2020, far beyond general advice for 'normal' people and after 71 vulnerable people died in the UK. Could they have been saved if better guidelines for vulnerable people were implemented, and accessed, earlier?</div>
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<i>Changes Could Have Been Made</i></h3>
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Almost overnight, education to workplaces quickly changed and allowed remote working. Why am I mad at that? Because those changes haven't been allowed for thousands of disabled people who <b>want</b> to work out there. I, personally, had to teach my own GCSE's because I couldn't attend school (bar 2 weeks of private tuition) and battled for years to get a job where I can work from home. The fact that most organisations have just shown now they <i>can </i>make adjustments shows they aren't willing to take someone with a disability on. I really hope that after this pandemic, many companies will see the benefits of home working and take on someone with a chronic illness, but I am worried everything will just return to old practise.</div>
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<i>Carers Are Heroes</i></h3>
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We've all seen that hospital staff are struggling. Long hours, people stealing hand sanitiser and working round-the-clock to manage. The NHS is fantastic. Who I really want to talk about though, are carers. Agency carers, often on minimum wage, don't have the option to stay off work in this time of crisis (and many wouldn't choose to anyways) and go above & beyond to care for clients. My carer bought me an isolation present today. They've been promised protective gear by the government, but have received non of it. Even getting hand sanitiser is difficult. Now, carers who are family/friends also are having a particularly hard time. Currently earning £65 per week to provide what is often 24h care for their loved ones, they aren't given supplies. We have probably spent more than a weeks allowance on cleaning products alone to keep me safe. It's time that the wages for carers, both agency and home, gets reassessed.</div>
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<i>I'm asking for a change. I'm so passionate about the health & welfare of others and this situation has really open my eyes even more to the disabled community. If you feel the same, please, leave a comment. Contact your MP. Share the blog. We can make a difference.</i></h4>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvTlJdoCJUzVd_zgfLL4LbGpjSBjWU20JpNUs2TgaFbKjohMYon3Fda3iciHHjGGtXRR1w0agGfT7PABpjK7_anVxg7iPCyL2CUC1LrX8uB3MAvrTuqB7L1tEvwyalqYeM2tfg-vm1dyxy/s1600/34268598_10215053903734100_8744273318363791360_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="960" data-original-width="768" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvTlJdoCJUzVd_zgfLL4LbGpjSBjWU20JpNUs2TgaFbKjohMYon3Fda3iciHHjGGtXRR1w0agGfT7PABpjK7_anVxg7iPCyL2CUC1LrX8uB3MAvrTuqB7L1tEvwyalqYeM2tfg-vm1dyxy/s320/34268598_10215053903734100_8744273318363791360_n.jpg" width="256" /></a></div>
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I am the vulnerable. I am worthy.</div>
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<span style="font-family: inherit;"><i>Hope everyone is staying safe and keeping as well as possible,</i></span></div>
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<span style="font-family: inherit;"><i>Kate x</i></span></div>
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kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-57893416629211629602020-03-06T17:07:00.000-08:002020-03-06T17:07:14.324-08:00*GIVEAWAY* - Personalise Your Wheelchair<div style="text-align: center;">
I've had the pleasure of getting to know some fantastic brands over the past year through networking at events like <a href="https://www.naidex.co.uk/" target="_blank">Naidex</a>, <a href="https://www.kidzexhibitions.co.uk/" target="_blank">Kidztoadultz</a> and through my socials. I've joined forces with 3 of them to launch my first giveaway which is the ability to personalise your wheelchair with some really useful, and funky, items!</div>
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I recently wrote a guest blog for BundleBean on '<a href="https://www.bundlebean.com/the-power-of-personalisation/" target="_blank">The Power of Personalisation</a>' talking about just how important it is to be able to personalise your disability aid to your own style, which is why I'm so excited about this giveaway! </div>
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<span style="font-size: x-small;"><i>Please note: These items have been kindly gifted by brands for the giveaway but I have specifically chosen to work with them because I love their products (and own them!)</i></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9E1slNWygUg2fVGEpCASsItCtg5f13dLp7k9hEBv8xQtBXN8mTJeWDQP7GARYjffebfpAlDo-DcqMHJpjqo-hZgiWjLufnDlKbK0RuhK2IZfMDxlsvnWL1wI0SO0bLpDaXZJd7A63Ezoz/s1600/Giveaway.PNG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1600" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9E1slNWygUg2fVGEpCASsItCtg5f13dLp7k9hEBv8xQtBXN8mTJeWDQP7GARYjffebfpAlDo-DcqMHJpjqo-hZgiWjLufnDlKbK0RuhK2IZfMDxlsvnWL1wI0SO0bLpDaXZJd7A63Ezoz/s320/Giveaway.PNG" width="320" /></a></div>
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<span style="font-size: large;"><b><u>The Prize</u></b></span></div>
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<a href="https://meru.org.uk/product/flexzi-1-funky-flexible-gadget-stand/" target="_blank">Meru Flexi 1 (in pink)</a></div>
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<span style="font-family: inherit;">MERU design and manufacture unique, assistive products for disabled people. </span><span style="font-family: inherit;">As a charity, they are able to develop products which wouldn’t normally be commercially viable to help people who may have very specific or complex needs.</span></div>
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<span style="caret-color: rgb(125, 125, 125); text-align: start;"><span style="font-family: inherit;">Flexzi is an adjustable support system for items like buddy buttons, mobile phones, remote controls and sat-navs. It is made from a single strand of flexible plastic segments that allows perfect positioning of your devices.</span></span></div>
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<span style="caret-color: rgb(125, 125, 125); text-align: start;"><span style="font-family: inherit;"><a href="https://www.bundlebean.com/product/buggy-organiser/" target="_blank">BundleBean Organiser</a></span></span></div>
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<span style="text-align: start;"><span style="caret-color: rgb(125, 125, 125);"><span style="font-family: inherit;">BundleBean originally started with a baby range but then launched into the disability market. They now produce funky wheelchair cosies, for both children and adults, which fit into a small bag and are easy to put on. They also have their organisers which can get attached to wheelchairs and their new spoke guard range.</span></span></span></div>
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<span style="font-family: inherit;"><span style="background-color: white; caret-color: rgb(60, 64, 67); text-align: left;">The Travel organiser. Perfect for </span><span style="text-align: left;">drinks</span><span style="background-color: white; caret-color: rgb(60, 64, 67); text-align: left;">, phone, </span><span style="text-align: left;">keys </span><span style="background-color: white; caret-color: rgb(60, 64, 67); text-align: left;">or medication, these bags will pimp any ride and keep all your essentials within reach!</span></span></div>
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<span style="font-family: inherit;"><span style="background-color: white; caret-color: rgb(60, 64, 67); text-align: left;"><a href="https://getpyc.com/product/large-seat-bag/" target="_blank">PYC Under Seat Bag</a></span></span></div>
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<span style="background-color: white;"><span style="font-family: inherit;">PYC make wheelchair upholstery to protect and customise your equipment as well as selling useful items alongside it!</span></span></div>
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<span style="font-family: inherit;"><span style="caret-color: rgb(102, 102, 102);">This large under seat bag provides ample room whilst being very easy to fit and use. Four clips on each corner allow the bag to be detached and re-attached with ease without undoing the straps. It can easily store your everyday items to medical devices - perfect! PYC are also including 2 </span></span><span style="caret-color: rgb(102, 102, 102);">keyrings!</span></div>
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<b><u>How To Enter</u></b></h2>
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You can enter via <a href="https://www.facebook.com/katestanforthpublic/photos/a.104550754275102/225314352198741/?type=3&theater" target="_blank">facebook</a>, <a href="https://twitter.com/KateStanforth/status/1236021518582394881" target="_blank">twitter </a>or <a href="https://www.instagram.com/p/B9Z5-xsgD_a/" target="_blank">instagram</a></div>
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All t&c are in the posts</div>
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Good luck!</h3>
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Kate x</div>
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kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-9939099664112191342020-02-26T13:24:00.000-08:002020-02-26T13:24:50.529-08:00The Follower Count<br /><div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjB8N-1wNf3AXo5Mw00yrH0-sVCK91oGXa-4yrwPSWsb22zeEzcsLOEh3KVHWDN3QV8-YQqOfRVbQ0ELXS5wIhSeD5NldPKgIy3aICWDC5rAEr3tujcKpDPr27LKE1xagwCgC43f11xRDnR/s1600/Follower+Count.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="600" data-original-width="600" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjB8N-1wNf3AXo5Mw00yrH0-sVCK91oGXa-4yrwPSWsb22zeEzcsLOEh3KVHWDN3QV8-YQqOfRVbQ0ELXS5wIhSeD5NldPKgIy3aICWDC5rAEr3tujcKpDPr27LKE1xagwCgC43f11xRDnR/s320/Follower+Count.JPG" width="320" /></a></div>
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<span style="text-align: start;">There is no doubt that social media has a huge influence on modern day life. From keeping in touch with friends to strategic marketing, it has a variety of uses, but what happens when you become engrossed in the numbers that 'follow' you?</span></div>
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I guess you could say I have a few jobs in the social media industry. I work part-time for the ME Association, running their social media accounts, where my job is to provide engaging and informative content. Growing a following through those feeds is vital for bringing in things like donation, sharing important information and simply supporting as many people as we possibly can. </div>
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On a personal level, some people would class me as a low level 'influencer'. I model, dance, blog & I'm a keen activist. I use my channels to update people on my life and connect with my audience. I use my blog and instagram the most, but have facebook, twitter and even TikTok.</div>
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As a dance teacher, particularly who teaches young people who are just starting on social media, I've had an incredible amount of talks in the past month about follower counts. Young people are becoming obsessive about how many people 'like' their content, whether they are featured on certain pages and who 'follows' them. Of course, there are always concerns about online safety (which I'll save for another blog) but I always feel very hypocritical telling them that your follower count doesn't matter. </div>
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The truth is, as a self-employed, part-time, freelancer who constantly is looking for work - it does in this sector. To get a blog featured, you often will need to share you stats, which largely reflects your following and engagement. To get brands on board, it's exactly the same. Even with modelling now, your social influence can hugely affect your job prospects and I've seen plenty of jobs which specify a certain amount of followers before you can even apply.</div>
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Will a follower count ever be added to your CV? No. I don't think it's realistic and is a true reflection on a person. But I do think social media can be used really wisely these days to enhance your public presence. My fear is that vulnerable (young) people are doing all sorts to get 'Instafamous' and I can see why. I'm honest with my students about my accounts and I think that's the best way forward. And even though it's part of my job, I'm trying not to get fixated on the figures. </div>
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Kate</div>
kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-34760057370432960612020-02-16T15:02:00.002-08:002020-02-16T15:36:17.294-08:00Tyneside Cinema - Review<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinjg9-y8MDWcu5HfKO9io9uFpKkoJSMh9zn4vahJkHDhqL2GQW6zlyThwDoqD4b9-xF979nlPlEC-QdHOZb6eOIRwc7L4iC76lqulce-30TSa9uYe7z9BIA0m2VPEckEx0JtHTrwqqWx8m/s1600/Tyneside.PNG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1200" data-original-width="1600" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinjg9-y8MDWcu5HfKO9io9uFpKkoJSMh9zn4vahJkHDhqL2GQW6zlyThwDoqD4b9-xF979nlPlEC-QdHOZb6eOIRwc7L4iC76lqulce-30TSa9uYe7z9BIA0m2VPEckEx0JtHTrwqqWx8m/s640/Tyneside.PNG" width="640" /></a></div>
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Tyneside Cinema</h2>
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In December last year, I held one of my first 'proper' events which was a chronic illness Christmas party at the Tyneside Cinema. It's taken me awhile, but I wanted to pop up a quick review up of the venue and it's facilities!</h4>
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Venue</h3>
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The venue itself is fabulous. The entrance door has a power operated button and there is a large list which will accommodate most wheelchairs. The room we booked for the event, the private cinema, had plenty of space to manoeuvre wheelchairs, adapt seating, change the temperature and even adjust the sound. I have been in the 'normal' cinema and with a wheelchair you usually sit in the VIP section at the back which has plenty of space and comfy chairs to transfer if you can/would like to. The cafe there is a little more tricky at peak times because there is a lot of tables, but there is a very good menu for allergies.</div>
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Access to the Venue</h3>
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This, unfortunately, is a real let down. Parking is very hard (as it is everywhere in town) but if you go when it's quiet you could park near the Theatre Royal without having to self-propel too far. From the station, it's quite a hike. The path up to the cinema is also a bit uneven. You really need to get a taxi to drop you off, or, have a power chair. (Or a strong person to push you!)</div>
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Staff</h3>
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One thing that often gets left out is how the staff treat you as a disabled person and I've always had positive experiences here! They have been very welcoming and even adapted requests to suit medical needs. </div>
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Toilets</h3>
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There is a large disabled toilet, but no changing room facility. </div>
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Price</h3>
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Disabled & wheelchair users have two prices. Off peak (Mon-Fri before 5pm) which is £7.75 and Peak (other times) £9.25. Carer tickets are free. However, Refugees, Asylum Seekers, those receiving Job Seekers Allowance, ESA and PIP can go to the cinema for £1 every weekday before 5pm (not on bank holidays). There are also other schemes available on there website <a href="https://tynesidecinema.co.uk/visit-us/tickets-booking/" target="_blank">here</a></div>
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Extras</h3>
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The cinema does relaxed screenings for those with autism, dementia friendly screenings & captioned screenings on top of things like kids club and baby club. I was impressed at my event when I asked for specific things like lower sound levels that they happily catered for this; they have an amazing access team who clearly care. </div>
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Overall</h2>
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The Tyneside Cinema has great access, with friendly staff and good initiatives to support people into enjoying the arts. It's 5* from me, which is why they got their very own drawing to celebrate.</h3>
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Kate x</div>
<br />kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-88447457412148985942020-02-10T14:36:00.001-08:002020-02-16T13:52:57.160-08:00The Dance of My Life <div class="separator" style="clear: both; text-align: center;">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEidOVVxShUnm7piHV9XtpzAQdN_6TRLseUPImpa6Gt9InZDYOsKllW9_Vrmq1YRH-v6tYanhosx6Z3ehyphenhyphenjtvZNp3XvlP8SBao2Zf-u1219s80XuY4u-OAV_UuateAnpotrhRa3kiap5TS5Z/s1600/Denim+George.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="490" data-original-width="1400" height="224" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEidOVVxShUnm7piHV9XtpzAQdN_6TRLseUPImpa6Gt9InZDYOsKllW9_Vrmq1YRH-v6tYanhosx6Z3ehyphenhyphenjtvZNp3XvlP8SBao2Zf-u1219s80XuY4u-OAV_UuateAnpotrhRa3kiap5TS5Z/s640/Denim+George.jpg" width="640" /></a><br />
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Picture by George at Asda for #WeAreMakingMoves </div>
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2019 was an incredible year for me. For someone who has so many limitations from their condition, I finally felt like I was opening doors again. I received a phone call from my agent in December confirming that I had been booked for what’s probably going to be the most incredible job of my life. I was going to Miami, to film for ‘George’ at Asda. They were launching a new denim campaign called #WeAreMakingMoves and I was going to feature as an ambulatory wheelchair user.</div>
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<span style="font-kerning: none;">Firstly, I had been booked as a disabled dancer, which is still <i>huge</i> in this industry. I have only just started doing small amounts of dancing for myself this year, after having to give up my dream of being a dancer over a decade ago, so it was a mixture of nerves, excitement and pressure. Of course, I always worry about my health and had no idea how I would cope with my first long haul flight, but as I do with everything, I can honestly say I gave 110%.</span></div>
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<span style="font-kerning: none;">About a week before the trip, I became really ill with a respiratory condition. I’ve had pneumonia before so we were pretty concerned about how ill I was. I spent all week in bed and even on the day of travel, I went to see an emergency doctor who gave me a ‘fit to fly’. The travelling was a struggle; my anxiety was sky high because I was ill already (and I’m not the best traveller) but once we arrived in Miami I settled. It was a flying trip, 3 days, so I rested as much as I could.</span></div>
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<span style="font-kerning: none;">Our first shoot was on a gorgeous rooftop and it was incredible dancing with such a talented cast. I had plenty of breaks, but spent more time on my feet than I should’ve. We went back to the hotel whilst the others went out for food & drinks and I slept until the next day. It’s hard, because I didn’t get the chance to ‘fit in’ and hang out with the cast & crew because my condition means I need to rest. However, this happens in everyday life, something I've learnt is a necessity and was just so grateful to be able to enjoy such a special day.</span></div>
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<span style="font-kerning: none;">Day 2 was the one I was waiting for. They took me to Miami ballet school and I found it hard not to let my emotion take over. I’d had the morning resting and I was ready for filming, this time it was my solo. This was my dance. It was unprepared improvisation, so I chose a Billie Eillish song and danced my heart out. I danced for 2 minutes, full out for the first time in about 11 years. When I finished, I turned around to the crew who were in tears and I just completely lost it. It was incredibly emotional. I was so proud, so tired and just wished I could do it all again. I had some more filming to do but needed a break so went to lie down, and that’s when it went downhill.</span></div>
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<span style="font-kerning: none;">I started feeling unwell and alerted my mum that I really was getting poorly. I tried to get up to go to the bathroom but collapsed on the floor and from there my throat started closing. What I’d done, is pushed myself too far. I had an anaphylactic reaction and it scared everyone. I didn’t do anymore filming, the crew were great and I flew home the next evening.</span></div>
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<span style="-webkit-font-kerning: none;">Once I was home, that was the hard bit. I have never felt like I have let anyone down that much. The hardest part was because I put my absolute everything into this, it was my time to do the disabled dance community proud, but frustratingly my body had other ideas. I’m still going to be teaching. I’m still going to dance too, without a doubt. I'm focusing on very slowly building up my strength again, not pushing myself to that extreme and using my chair a lot more wisely. But yes, when you see the advert and socials, know that every single piece of me went into that. And I have absolutely no regrets. </span></div>
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<span style="-webkit-font-kerning: none;">Kate x</span></div>
kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-43546634167726507402020-02-04T08:08:00.000-08:002020-02-16T13:44:33.964-08:00It’s #timetotalk <br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghWVlJVmf19jX65EWzFtfuNBnXKq0nUfFkwalv0j8hU9QrgZN38isHEHHF-_u6g9AUnPR91neW3WsxEiHxwQzhXGTdqi-k0pmiMGuS9q-Ip_11M1zZixQGd_EjjczHv6j11PdIgmbkrBgu/s1600/230FF9F3-61D5-4737-91FA-DACC8DCBD0F5.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1334" data-original-width="750" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghWVlJVmf19jX65EWzFtfuNBnXKq0nUfFkwalv0j8hU9QrgZN38isHEHHF-_u6g9AUnPR91neW3WsxEiHxwQzhXGTdqi-k0pmiMGuS9q-Ip_11M1zZixQGd_EjjczHv6j11PdIgmbkrBgu/s320/230FF9F3-61D5-4737-91FA-DACC8DCBD0F5.jpeg" width="179" /></a></div>
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<span style="text-align: start;">It’s #timetotalk about how the mental health system is failing those with chronic conditions and the impact it’s having on the person living with the condition and those around them. In the UK, 30% of people now have at least one chronic health condition. 4 million of these people also suffer with mental health conditions and many often struggle to access the correct, if any, resources.</span></div>
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My own mental health journey has been an extremely rocky one. Diagnosed in 2008, I’ve received a wide range of therapy from weekly psychology sessions, CBT, DBT, a range of medication, a long inpatient stay and tried what feels like all the alternative therapies going. Even with a large range of treatment dotted throughout the years, I still suffer with symptoms and I’m not afraid to admit now I do need support to keep me stable.<br />
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But, what happens when that support is not available? BBC have just published a recent article highlighting that over half the patients waiting for mental health support in general waited for over 28 days and that one in six waited over 90 days between their first and second appointment. For people with chronic health conditions, we might not even get a first appointment. What has come very apparent in my years in the system is we don’t fit the criteria. Because the mental health system is already incredibly stretched and has targets to discharge after a certain number of sessions, they don’t want people coming in with long term problems. So, we often aren’t taken in.<br />
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From the age of 18, despite having severe mental health problems, I was one of the many who wasn’t able to access any mental health support because I also had a physical health condition. There was one psychologist in the service, for a whole clinic of patients, whom I was able to see every 3 months but was unable to do any specialist treatment. This story, you will hear again and again in the chronic illness community. Because of the ‘chronic’ label, we lose access to other services, and it’s not right.<br />
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Why does this matter? First of all, it’s life saving. Mental health services save lives and there are many who are in crisis situations who aren’t getting the support they need. Secondly, longer term, this would have a positive impact on the patients wellbeing and quality of life; probably cutting costs for the NHS in the future. One of the treatments for chronic pain is therapy, yet there’s very limited resources. To keep many conditions stable, you also have to consider the persons mental health and keep that in check, and, if that goes then so does other areas (eating/attending appointments/community work/etc). You have to think about the impact it has on the people around the chronically ill person; how are the family and Carer’s coping with a person being so depressed? And finally, we deserve this. We have a chronic condition which can’t be cured and we deserve the right to have the support which isn’t limited to x amount of sessions when our condition doesn’t abide by these rules.<br />
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I don’t have an easy solution, as setting up mental health sessions for the chronically ill would take a lot of work and funding - I’ve even done some myself! But, I really do believe that more can be done to support the chronic community when it comes to mental health support and I for one will be an advocate for this. Something needs to change and I hope the change comes soon.<br />
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Kate x<br />
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Support information: Samaritans 116 123<br />
<br />kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-35934262279529814722020-01-23T13:13:00.004-08:002020-01-28T13:53:32.405-08:00PR - Loopwheel Urban Review <div style="text-align: center;">
This has definitely been a <i>well requested</i> blog. I was lucky enough to get to try the <b>only</b> pair of Loopwheel Urban's in the world at the moment before their release later this year. I certainly put them through their paces, taking them out in the city and off-road on sand, so, I wanted to share my thoughts with you! </div>
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<u><span style="font-size: large;"><b>About Loopwheels</b></span></u></h2>
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<b>What Is A Loopwheel?</b></div>
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<span style="font-family: inherit;">A Loopwheel is a wheel with integral suspension, designed to reduce vibration, increase performance and provide greater comfort. Giving you a smoother ride, they are more comfortable than standard wheels: the carbon springs absorb tiring vibration, as well as bumps and shocks. They’re designed for everyday use and are strong and durable. </span><span style="font-family: inherit;"><i>Loopwheels are not just a wheel, they’re a suspension system.</i></span></div>
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<b style="font-family: inherit;">The Problem With Vibration</b></div>
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<span style="font-family: inherit;"><span style="background-color: white; caret-color: rgb(116, 116, 116); text-align: start;">Studies have shown that wheelchair users are exposed to levels of vibration that are considered unsafe and that this can affect health and life quality</span><span style="background-color: white; caret-color: rgb(116, 116, 116); text-align: start;">. This is a risk factor for all wheelchair users, increasing the amount of muscle fatigue and potentially damaging connecting nerves. For me, vibration causes a huge increase in pain which is why I was first interested in the product. </span></span></div>
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<span style="font-family: inherit;"><span style="background-color: white; caret-color: rgb(116, 116, 116);"><b>The Solution</b></span></span></div>
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<span style="font-family: inherit;"><span style="background-color: white; caret-color: rgb(116, 116, 116);">Loopwheels solved this problem by using carbon composites to create an ‘in-wheel‘ spring that can absorb vibration, without the weight penalties of a suspension chair or the cost penalties of a full carbon frame. </span><span style="caret-color: rgb(116, 116, 116);">The <i>Loopwheels reduce vibration by 68% at 7Hz, 52% at 10Hz and 76% at 13Hz.</i></span></span></div>
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<span style="font-family: inherit;">Overall Loopwheels significantly reduce the amount of harmful whole body vibrations a wheelchair user will experience, this is turn reduces pain and fatigue and therefore allows a wheelchair user to travel further.</span></div>
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<span style="font-family: inherit;"><u>The <a href="https://www.loopwheels.com/product/black-wheelchair-wheels/" target="_blank">'Classic'</a> Loopwheel</u></span></h2>
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<b>Getting the wheels</b></div>
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I signed up for the <a href="https://www.loopwheels.com/try-before-you-buy/" target="_blank">'Try Before You Buy'</a> Scheme for the classic Loopwheels. For £20, this allows you to have the loopwheels for 21 days. This fantastic scheme enables people to see whether the product would be right for them. </div>
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<b>Transport</b></div>
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My loopwheels were black and fitted with ease to my manual wheelchair. I was travelling a lot when I first got my loopwheels and I found them easy to store in the car or on the plane. You can get a specially made bag to put them in if you travel a lot which I like!</div>
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<b>The Weight</b></div>
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One thing which a number of people contacted me about is the <u>weight of the Loopwheels.</u> They are 1.8kg without the push rim/tyre/axle. Looking at a leading competitor, X-Core, their wheels are 1.5kg without tyres. They aren't as lightweight as I would have liked and for me, I need to take the wheels off individually and use 2 hands to lift one (I am a weakling though!). You would have to make a decision about whether you could manage the weight of the wheels independently and also if you're willing to have that extra bit of weight in return for extra comfort; it's completely individual.</div>
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<b>The Look</b></div>
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Short and sweet, I love the look of the classic. Wherever I go, people ask about them and I always used them for my photoshoots. Having a 'pretty' chair gives me such a confidence boost so having wheels which reflect this is so special.</div>
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<b>The Ride</b></div>
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I have very small front castors which absorb a lot of vibration on my wheelchair. Even with the Loopwheels on, my castors at the front were still an issue. For you to get the <i>best</i> out of this equipment, I would thoroughly recommend using it with something like a <a href="https://www.triride.uk/" target="_blank">Tri-Ride</a> or <a href="https://www.gofreewheel.com/" target="_blank">Freewheel</a>. This elevates the small castors and allows the weight to go through the loopwheels, giving you the best possible result. I used them a lot in the dance studios and loved the glide on the solid floor. But, because I didn't have any add-on equipment to try, I don't feel like I felt the full potential of the Loopwheels outdoors, but I still felt a difference.</div>
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<b>Price</b></div>
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At £872, with payment plans available, they are certainly an investment. Other wheelchair wheels on the market cost around £250 mark, so you are looking at an extra £600. With the new personal budget for wheelchairs just released, there could be some hope that equipment like this could be provided as 'top ups' if a good enough case was made, but in the meantime, you might have to save your pennies.</div>
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<h2 style="text-align: center;">
<u>The <a href="https://www.loopwheels.com/product/loopwheels-urban/" target="_blank">'Urban'</a>Loopwheel</u></h2>
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<b>About The Urban</b></div>
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<span style="font-family: inherit;">Have one set of wheels for all occasions – from the streets to the park to the forest. Lighter; a</span><span style="font-family: inherit;">n everyday wheel that is light enough to lift easily with one hand. D</span><span style="font-family: inherit;">eliver all-important comfort and pain relief whilst being e</span><span style="font-family: inherit;">fficient to push and roll. W</span><span style="font-family: inherit;">heels that look great, and look technical – and perform brilliantly. Different spring ratings dependant on speed and weight.</span></div>
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<b>The Weight</b></div>
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<i>At 1.36 they are lighter than one of their leading competitors, X-Core, who's wheels are 1.5kg without tyres.</i> They were much easier to lift, meaning putting them in the car and attaching them to the chair was simple.</div>
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<b>The Look</b></div>
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Modern, slick, beautiful. You know the drill. I adore the look of these wheels.</div>
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<b>The Ride</b></div>
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I felt a significant difference from my 'classics'. Because they were so much lighter, I could self-propel for a significantly longer time which was fantastic. I also tried the wheels out on the sand whilst I was on holiday, and despite having no add on for my front wheels, they managed really well! The wheels are designed to tackle a multitude of surfaces and they certainly excelled in that. I also like the fact there are 3 different spring ratings. Because I'm so light, I didn't feel like I was getting the full spring potential in the classic sometime but on these I can opt for the soft so I can feel more benefit.</div>
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<b>Price</b></div>
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<span style="caret-color: rgb(116, 116, 116);">All those positive reviews do come at a price and that is £1,800. It's difficult when equipment that could potentially benefit your quality of life is so out of your price range, honestly I know, but I also have got to know the company well now and know how much they've invested so this is priced for the quality of the product. </span></div>
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<h2 style="text-align: center;">
<span style="caret-color: rgb(116, 116, 116);"><u>Overall</u></span></h2>
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I love Loopwheels because they genuinely want to help people live better. The brand is good, the people are good and the products are good. Personally, the Loopwheel Classics didn't have as much benefit to me as I'd hoped because I didn't have a piece of equipment to lift my front castors off the ground. If you want the full potential of them, as I've said before, I'd recommend giving them a go with a Tri-Ride, Freewheel or investing in some suspension front castors. However, the Urban for me was a game changer. I really felt the benefit from these wheels, especially with them being lighter and cannot wait for their official launch so I can get my hands on them!</div>
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If you'd like to learn more about Loopwheels, try or order some, visit their website <a href="https://www.loopwheels.com/">https://www.loopwheels.com</a></div>
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<b style="font-family: inherit;"><i style="font-weight: normal; text-align: center;">I am an ambassador for Loopwheels, because of my love for the product, so the wheels discussed in these reviews were either #Gifted or PR trial. But, I certainly am honest with my review of them!</i></b><br />
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kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-2961705085340940612020-01-19T12:38:00.002-08:002020-01-19T12:38:55.246-08:00Blue Monday<div style="text-align: center;">
<i>January has been a difficult month for me, personally. As someone who already suffers with Seasonal Affective Disorder, adding leaving your job and difficult medical appointments to the mix, then you have the recipe for a rather depressed Kate. Dealing with my mood is something I'm still learning how to handle, but, I'm trying to build resources I can tap into when I'm struggling, and what a better day to share some of these than on 'Blue Monday'. </i><br />
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<span style="font-size: x-small;">My go-to 'cheer up' place; Starbucks (with a Chai Latte)</span></div>
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<b>Talk</b><br />
Whether it's friends, family or helplines, one of the most important things is to talk about how you feel. With mental health resources increasingly stretched, referrals can take (what I personally think) an unacceptable amount of time so self-help is often the only route to go down. <a href="https://www.samaritans.org/" target="_blank">Samaritans</a>, without a doubt, is a helpline which is recommended to many, but you can contact your local Crisis team who can asses you over the phone or at home. There's also an increasing amount of local support groups, so have a look online and see if there's something in your area which might be beneficial.<br />
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<b>Routine</b><br />
When your mood dips, all you want to do is crawl into bed and eat, I know. But, trying to keep some sort of routine is really important in maintaining a little bit of normality. For me, this means eating, showering & getting dressed when possible, then spending time with my family downstairs on an evening so I'm not always by myself in my bedroom. For you, it could be going on a walk each day or putting on your make-up, it's completely tailorable to what you can manage and your usual routine.<br />
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<b>Social</b><br />
It feels like the last thing you want to do, but keeping in touch with the world is important during this time, even if it's just with a few people in small amounts. Whether you text, spend some time online or make it out to a cafe, this can really help reduce feelings of isolation.<br />
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<b>Self-Care</b><br />
You hear it all the time, self-care is important. It can be a whole range of different things, from taking some time out to do some mindful breathing to having a relaxing bath. Find what's right for you, what makes you relax, and try implement it in your daily routine.<br />
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<b>Contact</b><br />
A one not many people put on their lists, but I find contact from clothing, blankets & animals extremely beneficial. Wrapping myself up in a 'teddy bear' feel snuggly blanket then putting a weighted blanket over the top helps decrease my anxiety. I also find that when I'm not well, having comfy clothes on (my large onesie) I feel more relaxed. I have an assistance dog and I hug him multiple times a day; he also lays across my lap. This contact from him, and stroking him, really helps my mood too. So, I thoroughly recommend soft clothes, weighted blankets & pet therapy!<br />
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<i>I hope these tips can be useful to someone going through a bumpy spell. Remember, January is a hard month and please reach out if you need help. Sending love to you all!</i><br />
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Kate x</div>
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kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-36261063463972416092020-01-13T10:34:00.002-08:002020-02-16T13:44:21.993-08:00Chronic Pain<div style="text-align: center;">
<i>I have been ill for over a decade now and can't remember a single day where I haven't been in pain. Pain is a huge part of my life now and accepting this has been a difficult journey.</i> </div>
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<span style="font-size: x-small;">Photo - Hannah Todd photography & Beauty By Belinda Make-Up for Invisible Illness Campaign</span></div>
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<b><u>Pain And It's Impact On My Body</u></b></div>
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Pain batters my body. It batters me mentally, physically and emotionally. My pain levels can peak to around a 9/10 daily, which often leaves me curled up and unable to do anything at all. I lose days, I miss events and my quality of life significantly deteriorates because of these levels. Having complex conditions, I get a range of pain which makes it even harder to treat. I can't type for long without getting shooting pains down my fingers, I can't sit and enjoy a coffee on a normal chair for more than 10 minutes without my back causing agonising issues and having multiple dislocations a day strains your body tremendously. Some days, I can't even put clothes on my legs because of the pain where as others I have to put a weighted blanket on them to stop the spasms; there is no continuity in this complex illness. From the simplest of tasks such as just being awake, to more complex things like exercising, pain impacts every part of my life.</div>
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<b><u>The Search For A Cure</u></b></div>
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I have tried an incredible amount of things to try help my pain levels. From strong pain killers & botox injections to burying crystals in the garden... I honestly feel like I have tried every avenue clinging onto the smallest bit of hope to give me some relief. After having my first appointment with the pain clinic today, it became apparent there was nothing else they can do, which I knew but equally broke my heart. I sat, tears rolling down my face, as it hit me that there really was no magic cure. So what do you do in this situation?</div>
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<b><u>Managing Pain</u></b></div>
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It's clear that pain is always going to be a substantial part of my life, but now I'm looking at how I'm going to manage this the best I can. I recently got fitted for a sleep pod (which I'll be writing about soon!) which should hopefully help lessen dislocations in my sleep and allow me a safe place to rest when needed. I'm looking at more supportive seating, building up a timetable of my work and using the tools I do have to the best of my ability. It's not a cure, and it's definitely not perfect, but we will work with what we've got.</div>
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Having a chronic illness is a life-long grieving process. It's something I say to everyone and I completely believe. It's totally okay to have days when things are tough, and you grieve the life you had pre-illness, and today is one of those days for me. But, it doesn't mean I won't keep going and hope you will too.</div>
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<i>Do you have chronic pain? Do you have any tips to manage it?</i></div>
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<br />kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-24514249370648105232019-12-31T09:57:00.000-08:002019-12-31T10:09:44.155-08:00Tips For Celebrating New Year At Home<div style="font-family: "Helvetica Neue"; font-stretch: normal; line-height: normal; text-align: center;">
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<span style="font-kerning: none;">New Year is one of these celebration’s which has been hyped up to be a huge thing. There’s parties, displays and (of course) resolutions. Don’t get me wrong, I do like celebrating New Year because for me, it’s another milestone and a ‘new start’. But, when you look on social media and see everyone at lavish events, New Year can be a triggering event.</span></div>
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<span style="font-kerning: none;">I have celebrated New Year in many different ways. When I was well, I did the parties. But for over a decade, I’ve spent most of my New Year's in my bed. To many, this might not be an issue, but I know to the chronic illness community reading this it feels like you are turning over a new page in exactly the same position. And I hear you. This is why I wanted to write these tips to hopefully make New Year a bit easier for you all tonight</span></div>
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<span style="font-kerning: none;"><b>Ain’t No Party Like A Bed Party</b></span></div>
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<span style="font-kerning: none;">If you are super hardcore and manage to stay up ’til midnight, and are well enough to celebrate, who says the party can’t come to <i>you?</i> That’s right, I’m talking banners around the bed frame, throw on those sparkly heels (because you don’t even have to walk in them) and celebrate in style.</span></div>
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<span style="font-kerning: none;">Leading on from that, whether you’re able to text a friend or invite someone over for an hour, being able to talk to someone can make the world of a difference. There’s the #JoinIn which is a hashtag on twitter started by Sarah Millican to help combat loneliness over the festive season and reaches a peak over Christmas and New Year. Finally, the Samaritans always have someone to talk to on 116 123.</span></div>
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<span style="font-kerning: none;">However great or difficult the year has been, I always leave myself time to reflect on the previous year. It’s important to remember the high’s </span><span style="font-kerning: none; text-decoration: underline;">and</span><span style="font-kerning: none;"> the low’s, but write down what I like to call the 3 L’s. What you’ve loved, learnt and lost. These will help you reflect, but, also shape your year ahead.</span></div>
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<span style="font-kerning: none;">I’m not brilliant at keeping a diary, so if you’re like me, I thoroughly recommend a memory jar. Start the New Year with an empty jar and every time you achieve something, however small, write it on a piece of paper and pop it in your jar. On New Year’s Eve the following year open them all up and see what marvellous thing’s you’ve done!</span></div>
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<span style="font-size: x-small;">Celebrating many events in bed in style</span></div>
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<span style="font-kerning: none;"><i>I just want to wish you a very safe and comfortable New Year. We hope 2020 brings you good health & happiness to you all. Keep going.</i></span></div>
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Kate xx</div>
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kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0tag:blogger.com,1999:blog-7904663681619825265.post-533991769823263202019-12-23T13:39:00.001-08:002020-02-16T13:54:10.105-08:002019 Round-Up<div class="separator" style="clear: both; text-align: center;">
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In A Nutshell</h2>
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2019. What a year. I have spent many years in bed dreaming of being able to achieve many things. This year, I am so lucky to be able to say I have had incredible opportunities and some of these dreams have been fulfilled. I want to write this blog as something to remember, because I am all too aware of how temporary my health may be and how easily I could relapse. I also know that opportunities like this don't come knocking at your door everyday. So please, celebrate with me. I definitely don't want this to come across in a bragging 'look what I did' way but to show hope to some of you out there who are also fighting life-long conditions.</div>
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Charity Work</h2>
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Volunteering and running my own projects is something I absolutely <i>adore</i> doing. <a href="https://www.projectparentgb.com/" target="_blank">Project Parent</a> is on it's 5th year now and celebrated handing out over 1,800 boxes and creating over 2,000 smiles. This project, which donates gift boxes to <i>parents </i>who are spending time in hospital looking after their poorly children, would not be possible without my incredible team of volunteers. </div>
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For the first year, I set up another project called <a href="https://www.alliedmobility.com/sponsor-a-stay-review-by-kate-stanforth/" target="_blank">Sponsor A Stay</a>. This project enabled 5 disabled guests and 5 carers to get a fully funded weeks respite with activities, food & accommodation at Calvert Trust. We had 5 corporate sponsors who made this possible and had over 100 people apply for a place!</div>
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I've continued my public speaking this year which I enjoyed, talking at The Inspire Network, International Women's Day and Tynedale Rotary Club. It's something I really enjoy doing and I love networking with other like-minded people!</div>
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The final one I absolutely loved was at the end of this year, setting up my first 'proper' chronic illness event at <a href="https://tynesidecinema.co.uk/" target="_blank">Tyneside Cinema</a>. We hired a private cinema space to watch a Christmas movie, ate lots of snacks and all made friends which is so important in this isolated community. It was the most lovely event and one which I hope to continue in 2020!</div>
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Modelling</h2>
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This is really where I can't believe how crazy this year has been. In April this year, I signed with <a href="https://www.zebedeemanagement.co.uk/kate-s" target="_blank">Zebedee Management</a>. I modelled locally for the National Trust campaign & a North East outdoors campaign. My first job with Zebedee was a TV commercial (yet to be aired). Then, I had a <i>huge</i> shock when I ended up at a casting for Sainsbury's and was chosen for their 'Work It' campaign as 1 of 15 inspirational women in work. From there, I had a photoshoot with SeaLife (which was incredible to see 'after dark') and then one with my family for ParkDene. Just as I thought the year had rounded up, I receive a call asking if I have a passport... I'm booked <b>as a disabled dancer</b> for an advert in Miami! Between these bookings, I've also had some amazing collaborations too. I've worked with the incredible <a href="https://www.hannahtoddphotography.co.uk/" target="_blank">Hannah Todd Photography</a> who's photos got me many of my jobs, <a href="https://www.instagram.com/beautybybelinda/?hl=en" target="_blank">'Beauty By Belinda' </a>from 'The Glow Up' on an Invisible Illness Campaign, J<a href="http://joelaws.co.uk/" target="_blank">oe Laws</a> & <a href="http://www.ajedgar-mua.com/" target="_blank">Alexandra Edgar</a> on a Cinderella inspired shoot to celebrate my Glass Slipper nomination and finally, a <i>monumental</i> teaser trailer for 'This Abled Dancer" with <a href="https://www.holomedia.co.uk/" target="_blank">Ben Field</a>, Ash & Luke. Phew!</div>
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Job</h2>
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2019 also got me my first 'proper' job! In Summer, I was offered a part-time (5 hours a week) job by the <a href="https://www.meassociation.org.uk/" target="_blank">ME Association</a> as a Social Media Manager. This, spilt up into small sections throughout the week, allows me to work from home and is flexible so I can work around my condition. I also work for 45mins a week teaching ballet from my wheelchair when I'm well enough which I absolutely love & hope to continue in 2020. Finally, my blogging/writing started to get noticed and I've had the most amazing support from <a href="https://www.alliedmobility.com/?s=kate+stanforth" target="_blank">Allied Mobility</a> who I write for on a monthly basis. I'm incredibly lucky, after over a decade of trying to find work, to finally have landed some flexible roles which work well with my health.</div>
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Friends</h2>
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I spent this year really finding a small, but mighty, set of friends. At the start of the year I travelled to London (which at the time was a <b>HUGE</b> thing for me!) to say goodbye to my best friend, Alex, as he left for Australia. Despite being the other side of the world, he will always be my rock. Going through the year, I met new people. I went to <a href="https://www.naidex.co.uk/" target="_blank">Naidex</a> and found a fabulous group of chronically-ill people I could trust. The same happened at 'Sponsor A Stay' and my Chronic Illness Christmas Party. I became friends with a group of bloggers/vloggers who are now some of the most supportive people and I absolutely love being able to do some 'normal' things like go to events with them. Before this, I felt incredibly isolated and tried to fit into a crowd which simply did not get me. Don't get me wrong, I still feel very lonely, but this year I'm starting to feel a little more like part of life. There are a lot of people in 2019 who have changed my life and I just want to thank you all for being in it.</div>
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Not To Be Forgotten</h2>
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The highlights that I can't miss. From being nominated as one of the top 3 most 'Remarkable Women' in the North East to getting VIP Press Tickets with my best friend to see WICKED (and the after party) in the West End. I saw Hamilton too which was absolutely incredible! Being featured on The One Show to being printed on Metro's Hot List., this year has certainly been unbelievable!</div>
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It's Not All Plain Sailing</h2>
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I look back at this list and I'm thinking "Wow Kate, look at you". Yes, I've done some <i>incredible </i>things. But, a lot of it has come at a cost. I have had a lot of health problems, some of them have given us <i>the biggest</i> scare. I push my body to it's absolute limits, especially when I get opportunities which involve travelling/modelling/dancing and at one stage this year we were genuinely concerned I was going to stop breathing and there was nothing we could do - that's how serious my condition can get. I've been in hospital an awful lot, I've been in bed a lot and I still haven't had a day without severe fatigue/pain. I try keep my platforms fairly open and honest, but I still hide a lot of my condition and it's impact on myself and others. It's easy to see all the achievements on screen and think 'Kate is doing better'. These past few months, I have been able to use my energy on amazing things and I have been so much better than in previous years when I couldn't even move. But, I'm all aware of how temporary this may be. I've had times like this before and gone into major relapse so I'm just making the most out of every single second. And, I hope you'll enjoy it with me.</div>
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I do small vlogs daily on instagram @katestanforth when I can to show you the highs and lows of living with a chronic illness and some of the reality of my condition rather than just the 'perfect social media' side. Do feel free to give me a follow if you'd like to see more!</div>
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I hope 2020 brings you good health, happiness and love. </h4>
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kate ♥http://www.blogger.com/profile/08398612617538206296noreply@blogger.com0